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Hi… was diagnosed with anal cancer in January after thinking I just had stubborn piles for months. Various scans etc later thankfully no spread and due to have PIC next week with 6weeks radio starting week after plus 2 additional chemo sessions and a 2nd PIC.

the pain has been horrendous despite slow release morphine plus oramorph especially since Botox pain management has now worn off after 10 weeks

any help of advice most welcome! X

  • Thank you Irene.

    I have began a blog today also (APR surgery with Sharon August 2023)

    S x

  • I think that's a great idea, will hopefully give information and hope to others following your path. I look forward to reading it too. xx

  • So sorry that you're facing this, Shalaway, and I'll be following your blog with laser vision. I get shaky at the thought of hearing this after going through treatment and the immediate recovery. Wrapping you in astral warm blankies and purring kitties.

    Hugs

    Suz

  • Hi 

    I've also had chemo radiotherapy ended end Feb with a possible reoccurring growth by May. I've just had biopsies and EUA, HRA which biopsies were taken of something suspicious. 

    My feeling is Cancer is back or treatment didn't work. Oncologist didn't comment when I asked.  Appointment next Wed to tell me results and plan. 

  • Jinnie reading your post is exactly my anxiety while 2 weeks away from my first scans… the thought of having to go through any of it again just fills me with terror.

    sending you massive hugs.. and positive vibes for your appointment and outcome xx

  • The surgeon I'm now under told me that she specialises in this area and I feel more confident under her care.

    My biopsies were so much better than my 1st round with the colorectal surgeon, who told me he didnt think I had cancer as it wasnt symetrical. 

    I Feel they taking it more seriously now! Yes I'm angry and high anxiety fed up and no control of what's happening to Me. 

    Waiting for the results is terrible, I feel worse than when I was 1st diagnosed. But they tell me this rarely happens so now I'm "special and rare " 

    Onwards and upwards. 

    So thankful to this group as nothing out there in  face to face for Anal Cancer support groups. My specialist nurse didn't even know what a sitz bath is !  

  • I was devastated to hear that the scans showed little change after the hell my body went through but there was further abnormal cells removed three weeks ago that confirmed residual growth. I just look forward to the day I can say I am cancer free.

    Sharon x

  • It was the colorectal surgeon who I’ve had most information from… only seen oncologist once some locum who really didn’t seem to care less! The colorectal surgeon is and will stay as my consultant he diagnosed straight away.

    thing is we don’t want to be special…

    time will tell… just hate the waiting!

    glad you feel better about it all despite the anger… sending hugs xx

  • Was it today you saw your consultant or did you mean next Wednesday? X