Update well I'm in hospital with temp ?infection only they can't find where.
My important ct scan is due tmrw, this hospital say they will do it But I've no faith as I did have cubicle as high risk of infection, last night they moved me to a bay of 5!
Ive had antibiotics and fluid drips and temps down to 37.2. I just want to go home.
Drs saying my groin is large, puffy and discoloured. its still leaking lymphatic fluid.
UPDATE
I started cycle 4 last Friday. I had lymphodema in my left leg, same side a groin lymph nodes with cancer.
Monday I started to leak from what I think is the biopsy site (done before chemo started to confirm anal cancer spread) its clear fluid weeping constantly. I sent photo to oncologist who requested to see me.
Devastated news, he "thinks" it looks like an ulcer and this is the tumour coming to skin surface and breaking down.
the biopsy may of SEEDED! ANYBODY HAD THIS ?
I need to have scan for this to be confirmed. Booked for this week.
Strange though as my lymphodema has gone down and my leg is normal skinny chicken leg. The fluid is still coming out and I'm having it dressed daily and resting up.
Any body got experience of this ?
ORIGINAL POST BELOW
I posted my journey previously. Last Post was when I was awaiting APER surgery last Oct 23.
Major surgery was done with full hysterectomy and stoma (martha) fitted Oct 23.
Given all clear from history. But before the 4 months mri I could feel a lump in my groin. Emailed oncologist who requested early scans.
It's back again, now in lymph nodes in groinand incurable.
I'm receiving chemo for 6 cycles and I've completed 3 so far. To try and contain and shrink.
Considering I started out with less than stage 1 and 95% curable, had chemo radiotherapy then reoccurrence. APER then reoccurrence both within months.
Anybody else in same situation?
I'm thinking to get another opinion privately, anybody else done this ?
Hi Jinnie,
So so Sorry ! I don’t think I’ve replied to your message 
. (Am out of my head).
I’m treated in Paris and I had several « second opinion » from the best cancer hospitals and institutes here…All the same. After radio-chemo failed -> APR, wich also failed so -> DCFm, failed, then -> carbo-Paclitaxol…I’ve just finished the 3rd cycle. PETscan planned in 10 days. I’m not very optimistic, I can FEEL the tumor, I recognize the pain now.
I am incredulous as you must be. I have spoken with a lot of people at more advanced initial stages who have been in remission since the first treatment (radio-chemo). When it doesn't want to, it doesn't want to! I think there is something in us (who were at an early stage but are insensitive to conventional treatments) that oncologists can't stand. It's crazy to be at this point for a fucking small isolated tumor "easily" cured at the early stage...
I read that your scan was not good
️and that you had stopped carbo-paclitaxol and that you were entering a clinical study, "Target" you say?
I’ve been searching but I only found this:
« TARGET: A Study to Evaluate the Treatment of Patients With Acute Decompensated Heart Failure (ADHF) Using an Automated Fluid Management System »…
It’s not the trial you are entering I’m sure. How can I find it ?
Anyway, in our case, I now trust more in trials that in the conventional treatment our oncologists have, as it’s obvious that from a reason I (and they!) don’t know, something in our bodies is causing these treatments to fail.
You have gone through all these devastating treatments like me, and we are forced to continue this journey. Even if I don't answer very quickly, you are in my thoughts! And I can still be reached whenever you want (I don't know well this forum, maybe private messages are possible?).
I am devastated to read about your pain and I hope that in the coming days the nurses will arrive at a dosage that makes them bearable.
And I hope that finally this trial will allow to set up a treatment adapted to your tumor cells, or at least to know them better to better target them
I hug you tight.
I am here.
xoxo 
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