Hi All
I've posted previously with my story.
Post treatment which was Dual therapy Radiotherapy with chemo tablets. Ended 27th Feb.
During the 4 month wait for MRI to see if treatment worked I noticed another growth. MrI and more biopsies Confirmated
Told i need urgent APR surgery (16th Aug )
I rang my CSN. to ask who I'd be hearing from in prep - she didn't know But will ask surgeon cns to ring me !
24th aug Pet scan done.
26th Stoma practice kit arrived in post
31st CT scan done
1st Sept pre assessment clinic
5th Sept stoma nurse rang asked if I had kit. I expressed my anxiety and disappointment in having this just posted to me with No contact.
6th Plastic surgeon rand. He went though his part in the surgery. What is due to be removed as APR but could be hysterectomy as well. Frightening or what !
9th Sept pre assessment nurse rand asking if I've heard from Colorectal nurses yet for support prior to surgery. NO she gave me my blood results and ferritin little low but ok for surgery. She is going to ring Colorectal nurses to contact me ASAP.
12th Sept stoma nurses due to ring to go through kit ?
13th RESULTS WITH CONSULTANT with how much are they going to remove ?
Some support through last month would of been good. Thankfully we have a Maggies centre and I've made contact and seen someone, who can't believe I've been left like this !
Finally Jinnie a date!!! As well as the clarity over the hysterectomy make sure you get answers to anything else you’re unclear about they owe you this at least. The time will fly by I’m sure & as Irene has said I too will be counting down the days with you. You know where we are should you need us.
Nicola
