Hello everyone,
I hope you are all doing well and those of you going through treatment are managing okay.
I am starting my treatment on Tuesday and I am starting to get so nervous! My psoriasis which has been at bay for ages is popping up all over the place which means I am very anxious.
Although I am pleased the treatment is starting as I was diagnosed at the end of May, which seems an age ago, I am really worried about how I will cope. I wondered if anyone could tell me how they felt the first few days of taking the chemotherapy. I am having the standard one infusion and then tablets and as my infusion is not until 11.30am on Tuesday, I won't be able to take my first tablets until at least 11 hours later. By this time it will be late evening and I am wondering if they will make me feel terribly ill and if I will need to be keeping an eye on my temperature etc.? The nurse at my introductory meeting was not that forthcoming so I feel a bit in the dark.
Also, does the first radiotherapy take longer? My mapping scan was done lying on my back, but I assume the radiotherapy is on your front? So much I don't know and that is why I think I am feeling scared!
Any advice would be really appreciated to help me feel less worried.
Thanks to you all.
Jo x
Hi Dahlia68 ,
Apologies for the late reply & I hope yesterday went as well as can be expected. That pre-treatment anxiety is the worst! Rest assured though once that first day is over you’ll begin to relax, so much of that anxiety is fear of the unknown. It can be a really long day but I hope it wasn’t too drawn out for you.
I had little to no reaction to the chemo & was on the same regime as you. I had very mild nausea a couple of days in although that may well have been down to all the anxiety I’d been experiencing prior to starting. Take the anti-sickness meds regularly for a while but I didn’t have the need for a repeat prescription after my first pack was done. I did get a couple of mouth ulcers in that first week but again they soon healed & had no more after that.
Nicola
