I've recently been told my AML is incurrable [partly age and partly already being a Disabled person] and about to start the recently approved tablet form of azacytidine. Is anyone in this forum already on it/have experience of it?
I've just been sent the link to the manufacturers website and it seems fatigue, reduced immunity and pneumonia are 'common' side effects. This was a bit of a surprise because the consultant indicated that I'd get 2 years 'quality of life' on this drug - hence my interest in other people's experience of it.
