Allogenic stem cell transplant in 3 weeks

Hi Jim! I'm a few months post transplant - had mine at the  queen Elizabeth in Glasgow and four days after discharge was straight back in with stage four GvHD and got hit with all sorts of treatments to control it. It wasnt pleasant, I'll be honest but the team in Glasgow (and no doubt wherever you will be treated) are very specialist and excellent at their jobs, they know what to look for and how to react to keep you in the best possible health and will pull out all the stops for you if you do happen to become unwell - which fingers crossed you dont. Although remember, a little bit of GvHD can be a good thing for controlling and fighting your disease! 

Happy to answer any questions about how the team tackled my GvHD as I got hit with lots of treatments to save me, because I didn't respond favourably to the steroids they usually use to treat. Good luck with your transplant! X

Hi Kirsty 

thats good to here that your the other side of transplant and doing well and reassuring for me to try and get my head round all this I'm currently in hospital now after picking up a bad lung infection ended up in ccu for 2 days after my lungs were drowning on the mend now hope to be home in a day or two and wrap myself in Cotten wool until the transplant Best of luck 

cheers Jim 

Hi Kirsty,

glad to see you’re doing not too bad. Katy isn’t on this forum, however I tell her about you and she said if you fancy meeting up one day when you are feeling up to it, she’d love to meet you, and I would as well. Katy is doing really well, they have said she can go back to work ( phased return) but can’t go on her usual ward which is sick children so she’s meeting with occupational health this week to see if they can offer her something that doesn’t involve sick children  

she has started her immunisation programme now but it’s the measles one she can’t have until 18 months post transplant at least and what puts her at risk with the kids. So hoping you carry on recovering well, we’re off on holiday tomorrow for a couple of weeks so maybe see you when we get back x 

Judith 

Good morning Jim Jim 101, as you can see there is life post Allo SCT so be encouraged that the hard work is all with it.

Have you been told what conditioning they will be using to jet wash your immune system?

Hi Judith! I've just noticed this comment! I'd love to meet up but unfortunately I'm still in a wheelchair and unable to walk too far in front of myself (damned steroids ate my muscles!) So once I'm a bit stronger it would be great to meet you both! I'm so glad to hear Katy is doing well, and I hope you enjoy your holiday! 

Kirsty xx

Hi Kirsty, pesky steroids, eh?! 

Hope things gradually improve for you, getting strength back after a SCT is really hard work! 

Hugs xxx