Hi all! I've come across from the non hodgkins lymphoma sites. I finished R-CHOP in November 2017, radiotherapy in february 2018. Had a really good summer, thought I was back .to '''normal"!
Leg pain started last September....scans and tests looking at spine initially whereas in fact there's a big mass of dlbcell lymphoma in my thigh matching my original abdominal mass. Due to pressure on sciatic nerve I have gradually lost function in my lower leg
Plan given to me yesterday is salvage chemo R-DHAP 2-3 cycles of 21 days likely followed by BEAM and Stem cell transplant.
This is another steep learning curve for me and I'm sure you lovely people will support me through this as you did on the lymphoma site
Consultant explained that the follicular element of my disease would remain but he's aiming for cure of dlbcell. But he said that last time!
Everything kicks off on my hospital admission next Wednesday. I'm having a PICC line. Not looking forward to spending 4 days on the cancer ward
Regards, Lynda xx
