Melphalan and ice

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hugs xxx

Thank you again for this.  By my reckoning my Melphalan day will be the Sunday after next.  I have an industrial quantity of ice poles already purchased in anticipation! 

How long after the infusion does one need to continue sucking? Hours or days? 

As an aside, this does made me smile a little! I used to be an English teacher and cannot help but remember Christina Rossetti's 'Goblin Market poem: "She sucked and sucked and sucked some more / She sucked until her lips were sore".  The poem is about the loss of innocence and sexual seduction! :)  Makes me giggle! 

Your mouth will be sore for several days. I found the dryness continued for several weeks. But it does help to keep using the mouth washes as well. My spell on ice poles coincided with last summers heatwave. I had lots of visitors that week because my room was so much cooler than outside.

Hi, 

If you possibly can, continue for a good half hour after the infusion ends; till yes, you can barely talk and have lost the sensation of all control of your mouth! Daughter managed all that for her first dose of Melphalan when she had her auto, but was not as conscientious when going through her allo (and also believed it was a smaller dose as the chemo was ‘reduced intensity’) so still got a sore mouth and throat but managed to continue eating/drinking small amounts of build up type shakes with ice cream whisked into them. 

As soon as your white counts begin to rise again the problems you might get all ease off. 

Hugs xxx