I dont know how to do this, chat, ask for support.
My son is 23 and he was diag with rhabdomyosarcoma in may 2024. He got lymphoma(?fluid build up in both legs?) But with chemotherapy and radiotherapy swelling went down and tumour disappeared. Brilliant news.
Then in October last year it reoccurred, aggressively.
In November at an oncology appointment my son was met by his oncologist who said duty of candour has been triggered as they may have missed some of the original tumour while mapping for radiotherapy(inquiry ongoing)so on he went with chemotherapy..
..until 2nd of Jan this year when they told him he was no longer curative due to this maybe mistake but still he carried on with treatment. That is until the start of Feb where his oncologist told him that even with treatment his cancer was progressing and spreading so treatment was stopped and he was told weeks to months.
We are now going into March and is decline is rapid. He is skinny hardly eating both legs are swelling he cant walk or lay down again. He just had a syringe driver put in but even that isn't controlling his pain.
I feel lost, watchi him like this and not being able to help is killing me im so utterly broken
