TPLL

Former Member over 5 years ago

14 replies
17 subscribers
1491 views

Hi there, I’m new to the group, a week ago I had the diagnosis of having TPLL , I start on Alemuzatab on the 30th of August . I’m aware this disease is rare and am keen to talk to anyone who has this diagnosis.

Former Member over 4 years ago in reply to Former Member

Hi, please do no apologise. It gives us a sense of what to expect. Your advice we will certainly take on board. And I would love to stay in touch. Xx

Former Member over 4 years ago in reply to Former Member

Thank you.
xx

Ozzy77 13 hours ago

Hello I know last post was over 5yrs ago but I was wondering if anyone in here diagnosed with TPLL recently.
Thank you.

Thehighlander 1 hour ago in reply to Ozzy77

Hi Ozzy77 and a warm welcome to the community.

Indeed this post is over 5 years old and where you see Former Member they have left the Community but let’s see if anyone is looking in.

If you are in the UK you may check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444

You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support.

Always around to help more or just to chat.

Mike (Thehighlander)

It always seems impossible until its done - Nelson Mandela

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