Corona Virus and Postponing treatment

Hi Raimbow62 I read some peopletreatments have been cancelled and read an NHS guidance putting cancer patients in to 6 categories.well now seems they took it off from the internet.I found it disquisting.

I am stage 4 I dont sleep because of this guidance I read. waking up every morning expecting a phone call re my treatment cancelled.Virus or not virus they shouldn't make cancer patients and their families to suffer more from stress.I didnt get the phone call but my brain is already full of if....

Anyway my boss at work has a friend who is a lawyer and I will chalenge the decision if I have to.No matter what stage we are we all deserve to live and not suffer no matter what stage we are.I am depressed but now willing to sit in the corner and wait for my "destiny".

Can you please give us the link.  Thanks

I have found a working link at

https://www.entuk.org/sites/default/files/files/Specialty%20guide_Cancer%20and%20coronavirus_17%20March.pdf

Hi Fortiemac

here’s something copied from a post in another group. Might be of interest. 

“Here is info pasted from Guardian after recent press briefing by Stevens, head of NHS.

Stevens says NHS England wants urgent cancer treatments to continue but specialists should have the opportunity to decide whether it is more risky to embark on treatment at this particular time given that you are more vulnerable to infection if you begin a course of treatment and become immuno-compromised as a result. Those are clinical decisions to be taken.

We have also reached an agreement with independent hospitals that cancer care can take place there rather than at the busy hospitals treating coronavirus patients, he says.”

Hello, Deloni,

Yes, thanks for that, it is reassuring (I actually saw it live on the telly - noticed the much increased distancing between the lecterns!).

I have one further chemo session (of four) and fifteen further weekdaily RadioT sessions (of 25).  I am due to see the oncologist next Thursday, though I may be contacted before (?).   I am hoping I will be able to carry on with this treatment plan so that statement gives me hope.  Throughout I have been terrified, having to travel to the hospital daily,  only since yesterday have the radiologists/nurses been wearing masks/aprons.

This wretched Plague is the last thing we on Chemo need.  My prognosis wasn't good, anyway (oesophagus, 50% chance of living a year),  but I was getting myself feeling hopeful as it was a very early diagnosis (pure luck).  "Pure luck" what am I saying....  Sorry, but the maniacal gallows sense of humour kicks in with me.  (For me, mood swings seem to be a symptom of a cancer diagnosis!)

Best regards

Hi 

Mood swings and humour are part of my day too, I often find myself joking about my diagnosis and some of my friends dont know how to react.. The mood swings omg i can be ok one minute then floods of tears the next.

I'm just taking one day at a time and trying to remain positive, I have accepted the fact that I'm terminal and I feel I was dealing with that really well then along comes the Virus and adds a new dimension to it all.. I'm seeing my oncologist on Monday and hope that aall my chemo sessions will still be going ahead.

Hi

Gosh that all sounds very familiar. Accepting that you’re terminal is a tough gig and does necessitate some dark humour at times. If you want a safe place where you can let this out without fear of upsetting anyone can I suggest you join the group living with incurable cancer? It’s my safe place and I get a lot of support from the folk there who know what this is like. Here’s a link: 

https://community.macmillan.org.uk/cancer_experiences/living_with_incurable_cancer/

Hope to see you over there and sharing that gallows humour