Went into hospital with pneumonia...came out three weeks later with terminal lung cancer.

Dear I am sorry to hear of your diagnosis of terminal lung cancer, I would like to invite you to join us in the living with incurable cancer forum, we are a supportive bunch of friendly people who understand what your going through right now and you a more than welcome to join us.

Hi  and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your diagnosis.

A cancer diagnosis can bring a lot of stress, confusion and questions but as Jane has indicated - talking with people who are on the same journey can help a lot.

This is the link to our very supportive Living with incurable cancer - incurable patients only group as this will open up your concerns to a wider audience who know exactly what you are going through at the moment.

Just follow the link I have created then hit the ‘Join This Group’ tab just under the main group name, then go to the 'Start a Discussion' tab and set up your very own Discussion and introduce yourself to the group and ask your questions.

You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.

We also have our ‘Ask an Expert’. section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.

All the very best.

Thank you so much. 

Thank you so much.

Hi

I am so sorry to hear about your diagnosis and, having faced an incurable diagnosis myself, I can really understand what you mean when you say you’re in a constant state of fear. Please do come and join the incurables group. You might find it’s too hard to join in at first and that’s completely ok. You can just to read and take what you need and what you find helpful until you’re ready. 

Can I raise a question? Has your oncologist used the word “terminal”? I know when I was told that the cancer was incurable my mind jumped immediately to terminal. I felt as though I was dying.  The reality these days is that new treatments mean many of us are treatable but not curable. We are living longer than would have been expected even five years ago. I’ve been living with incurable cancer for nearly four years now as my docs have found new drugs and clinical trials that have kept the cancer under control. During this time I’ve learned to manage the fear and anxiety and yes, I’ve learned to live with the cancer rather than die from it. 

I really hope to see you over in incurables. It’s my lifeline and I’ve made real friends there who know what it’s like, who just get it. 

xx

Thank you,...can you please tell me how I join in incurable? I'm really rubbish with technology..although I'm picking it up quicker than I thought I would.

Your message was very interesting by the way. I hope to catch up with you in incurables .

This is the link to our very supportive Living with incurable cancer - incurable patients only group.

Just click on the green link I have created then hit the ‘Join This Group’ tab just under the main group name, then go to the 'Start a Discussion' tab and set up your very own Discussion and introduce yourself to the group and ask your questions.

Hi

Click on this link, then follow the on screen instructions to join. I think it will tell you your application has to be approved. Let me know if you have any problems and I will ask a member of the community team to help. 

https://community.macmillan.org.uk/cancer_experiences/living_with_incurable_cancer/

Look forward to getting to know you! 
xx

I clicked on your link and it says awaiting approval.

Yes it states awaiting approval.