Recovering from Tonsil Cancer

It’s good that you persevere with the feeding, it might be easier now you have a pump to get what you need, syringing is hard work. 

I know what you mean regarding watching people eat, I can eat and I do it very fast before the excruciating pain kicks in, it’s not enjoyable but I do it and as I said I’m bloody hungry. 

I ate poached eggs yesterday and then a roast and a apple pie soaked in thick cream, I’ll weigh myself this week but I think my weight is ok around 65kg. 

Funny thing is I was in Costco the other day and I had the jacket potato with tuna. 

My swallow is sore, but I’m thankful I can swallow. I have my scan Dec but I’ve cancelled it till January because I just don’t want to know anything until after Christmas. I’m sure it’s been successful, well that’s what I’m telling myself. I try to block it all out but actually this is scary shit. I don’t get as anxious as I thought I would off and I have definitely handled this much better than I ever imagined. But the truth is no one understands what we’re are going through only we do. It’s evil. One day at a time - my saying is ‘this to shall pass’!

I’m very grateful as I know it all could of been so much worse. Children go through this with a smile. 

In regards to our kids - I constantly thought I’d rather it be me. I just couldn’t bare seeing a loved one going through what I have especially my son, so if I have to take it for the team, as they say so be it. I watch him doing as 20’year olds do and it gives me pleasure, he’s young and healthy - for that I feel blessed 

Im currently in bed - doing my test swallows to establish wether the pain is better than yesterday and build up the energy and inclination to get some pain meds down me, ready to start my day. I still rely on them as I made the mistake of thinking I didn’t need them a few weeks back - I was wrong! 

Constipaton well I feel like Fred flint stone! Hahaha work that one out 

Have a good day. Speak soon 

......ps 

there some really goos meditation and hypnosis on utube that I did throughout my treatment. I don’t know if it’s yr thing but it really helped me. Especially in the ‘dark’ moments.

i used to ask to be left alone, plug my earphones in and drift off. 

Search for pain, healing or sleep hypnoses. There was one I did for chemotherapy at the time. Healing whilst you sleep is a good one. I’m positive it helped my fast recovery. 

Pain and healing might work bow for you. Worth a try anyway. 

Hey All

I hope you’re all ok. Had my scan on Friday so sweating through the days until Tuesday night before seeing my consultant to establish how we’ve done. An extremely strange emotional situation to be in I can tell you, anyone else experiencing the same situation at the moment - I’m not quite sure what to do, say or think but its all very weird 

Reevesy

Hi REEVSEY

I'm not sure if you realise but you've posted this in New to the Site so the other members of the head and neck cancer group won't see it. If you're not sure how to get back to the group just click on the link I've created.

Best wishes x

I’ll be honest, I find this site very hard to navigate! 

julesey7

I'm so sorry you are having trouble navigating the site if you would like to tell us more about what you are try to access and do we can provide you with links to take you directly to the area you want to be in.

We are here to help and support you at all times.

Ian

Oh dear - no I just get a bit lost because im using an iPhone, I'm sure it’s much more user friendly if i were to use my laptop. I get there in the end not a major issue. Thanks for yr very fast reply. 

julesey7

No problem we have members and champions all using different devices and can help you. The site should be user friendly no matter what device is being used. Please don't hesitate to ask any questions you may have.

If you have a specify question would maybe suggest you start a new discussion and we can get to you quicker that way.

Please do ask anything you want.

Regards 

Ian

 for information 

Hi julesey7,

I hope you don't mind me popping on here but our Community Champion  explained that you were having trouble navigating round the site. 

The Community can be accessed on all devices and can take some time getting used to at first.

If you would like to tell me more about the navigation issues you are facing please contact community@macmillan.org.uk and I'll be more than happy to help you with this. 

Kind regards,

Jess

Macmillan Online Community Team

community@macmillan.org.uk 

Oh my goodness sorry it’s just me trying to get back to my conversations etc - the site amazing I’m not complaining at all. I just have trouble finding my conversations but I go through the email links now. Not a problem 

thanks for checking I appreciate it