Hi. I had a vulvectomy 5 weeks ago and all right nodes removed. My right thigh remains swollen and I am managing constant pain ankle to shoulder on right side. I am still very bed bound but try to stand and potter as much as possible. Fluid build up in right leg and hip. It all hurts and after any short period of time I find I have to return to bed and codeine mainly due to intense deep pain in thigh I am 47 and was up and about lots before the cancer ( ponies, farming). Any advice on at what point it becomes a lymphedema diagnosis and no longer post op? District nurses not really telling me much. thinking about seeing gp early Jan properly. Some of itt may be nerve damage.
