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More good news

daloni
Posted by

Hi Gang 

I’ve just had an email from my oncologist (and I mean just now. Yes, my oncologist emailed me at 10.30pm) with my latest blood test results. This is what she wrote: 

“Dear Daloni

I thought you might want to know that your CA125 has fallen further to 1608 

1 month ago - 4157

2 months ago - 14,392

Wanted to share this good news with you”

I am so pleased to hear this. The CA125 is a blood protein that goes up as the cancer grows and down as it shrinks. Normal is below 35. So while my latest result is still relatively high, the rapid downward trend is what really matters. I’m hopeful that my next scan on April 14 will show stability and possibly even some shrinkage. I think it’s fair to say that the trial drug I’m on is showing promise. 

xx

tvman
Posted by

Hi

Absolutely delighted for you, you'll sleep with a smile on your face tonight

Tvman xx

My philosophy is simple, love life and family.
Pet1968
Posted by

Hi !

That is really amazing !!! You are on the right path!! I'm so happy for you, please keep it up!!

Pet

flowerlady
Posted by

Great news Daloni. I bet your girls are really pleased too!

Xx

Flowerlady x
Popgate
Posted by

Oh I am so pleased and over the moon for you it's about time you had some good news fingers crossed and everything else for you on the next scan keep fighting on xxxxx

Flippen
Tinalay
Posted by

 This is the Best. News. Ever. 

Over the moon for you  I hope the next scan will confirm that the trial drug is working for you.

You must have a very special relationship with your Oncologist, and no wonder after all you've been through together.

Lots of love and hugs to you and the girls, and of course Noodle xx

Tinalay 
Maz59
Posted by

Fantastic news long may it continue.

Maz 59 

Maybug
Posted by

that’s fantastic news. You’ve put yourself through so much, you deserve a good result. x

ruthjp
Posted by

Hi,

good news. I am so pleased for you.

my lenvatinib arrived in an envelope today. Pleased that has worked out ok.

not sure if my GP will deliver my other meds.

havent heard from Annette

are you ok Annette 

Ruth age 67

 acc R submandibular gland wth lung mets liver met and brain mets 

Lass
Posted by

How are you with apps Ruth? Have you heard of Echo? And are you in England? 

You put in what meds you're on, the doses, and when you run out. Then it sends you an alert before you run out, you confirm if you need them or not, and a few days later the postman delivers them to you! It's fulfilled by Lloyd's pharmacy, so it's trustworthy, not random.

After horrible experiences with my local pharmacy, I switched and I'm very happy with it. 

Just a thought for folks, especially at the minute! 

Lass

Xx

Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today. - Thich Nhat Hanh

daloni
Posted by

Hi Lass 

that app sounds ideal. I use some controlled drugs. I wonder if they post them? I suspect not. 
xx

Lass
Posted by

Heya

Give me the name of a couple of them and I'll look them up on the app to see what it says. 

I remember reading something about controlled meds, but I can't find where I read it now. Lol. I think it just said they'd send it out needing a signature. But I'll keep looking. 

Lass

Xx

Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today. - Thich Nhat Hanh

Lass
Posted by

From the Lloyd's website regarding Echo, the FAQ page. 

"Can I order controlled drugs or medication that needs to be stored in a fridge?

 

Medication that needs to be stored in the fridge can be dispensed with Echo by LloydsPharmacy. Chilled (cold-chain) medication is sent via the Royal Mail 24-hour signed-for service and each box is packed with Woolcool Insulation. Find out more about chilled medication delivery here.

Echo by LloydsPharmacy can dispense controlled drugs via paper and electronic prescriptions. If you have a paper prescription you will need to post this to Echo to be processed. It can take up to four working days for your prescription to be processed. Controlled drugs are sent via Royal Mail 48-hour signed-for service."

Lass

Xx

Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today. - Thich Nhat Hanh

daloni
Posted by

Hi Lass

try buprenorphine patches 

Thanks! 

Lass
Posted by

9 different brands starting at 5 micrograms an hour up to 70 micrograms an hour available!

Lass

Xx

Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today. - Thich Nhat Hanh