For people living with incurable cancer only
This group is aimed only at people who have had an incurable diagnosis themselves, as we have had feedback that they would like a safe space to share their feelings openly among themselves.
If you have a loved one with incurable cancer, you are very welcome on the Online Community as a whole, but we would ask that you respect the wishes of people with incurable cancer and not post in this particular group. Instead, you will find really good support in the Carers group, the relevant cancer type group and the supporting someone with incurable cancer group.
it struck me that a few of us are having tough times, whether emotionally or physically, so thought perhaps we should resurrect this for 2020.
and I will kick it off
1. Finally made it through the worst of cycle 2 Carbo/caelyx side effects, touch wood, no being sick now for 3 days, thank the lord!
2. Walked round the local ponds with my best friend in winter sunshine yesterday, ducks and geese and thousands of snowdrops.
3. Today a trip to Waterstones, my favourite shop to buy new books, always a pleasure
love heather xxx
1. Finished last cycle of chemotherapy
2. PSA now <0.1
3. Able to work from home for the time being
Ooooh not done this before!
1. Reducing the plaxitaxol from 3 weekly to weekly doses has greatly improved the demonic side effects. So now my feet and hands have gone from numb to tingly. Not tripping so much or dropping small things. Huzzah!
2. I have tentatively started drawing again because I can hold a pencil! Making art greatly improves my mental wellness.
3. Have talked to my chemo team about exercise cus my meds have made me feel the size of a dirigible . We happily came to the conclusion that doing a bit of Just Dance on the Wii U is just as good if not a lot cheaper than joining a gym. So on with the glow bangles and leg warmers!
Oooh thanks fir starting this Roobarb. I’ve been meaning to do it so I’m glad you had more get up and go than me. I’ve had an extremely tricky couple of days so it’s good to focus on the good things
1. I had a nice surprise late birthday present today that was entirely unexpected and incredibly thoughtful
2. I put a frock on and felt glamorous
3. I heard something I really needed to hear about asking for help and being open to accepting it.
What is a community champ?
Goodness what a lot of rain we’ve had today. It was my daughter’s inset day today so my first good thing was getting out with the dog during the only rain-free interlude. We had such a lovely walk together.
The second was making the best of the dreary afternoon by making two batches of cookies for my daughter’s bake sale at school tomorrow. She’s raising funds to buy school supplies for a school in Uganda.
The third was eating a whole plate of food for dinner. Beans and cheese on toast. I didn’t leave so much as a crust. Go me!
Sounds nice, Anonymous13
I am reading the Book of Dust series by Philip Pullman at the moment. Easy to read, good story told at a good pace. Sometimes it’s so exciting I can’t read fast enough
I forgot to do this last night so this is yesterday’s three good things
1. Walking in the sunshine with the dog. The wind was bitter but, at long last, it wasn’t raining.
2. Choir practice. We are singing some new and difficult music but it felt like we made some headway
3. I made a big batch of granola. Oats, coconut oil, maple syrup, pumpkin seeds, sunflower seeds, sesame seeds, almonds, and dried sour cherries. That should last a couple of weeks.
1. Booked a girlie retail day - lost weight in last year so desperately need new clothes. Going to hotel in Stratford london right next to Westfield so can rest between shops etc
2. Booked a holiday with son and hubby - just a week in this country in a luzery lodge but cannot wait to have real family time
3. Got a sewing machine- always loved hand sewing so thought I would try making some of my own clothes
A girl after my own heart! I took up sewing when I had to give up work. I found I could happily spend a day gently sewing even when fatigue got the upper hand over most activities. As the fabric stash built up I taught myself patchwork. Hours of fun!
My three good things today
1. A bargain handbag. Fabulous Italian leather at 80% off in a posh local boutique that is doing a stock clearance. One for me and one for my big girl.
2. Watching my neighbour’s 10-year-old play with Noodle. I’m not sure who enjoyed it most. Me, the dog or the girl.
3. Treacle sponge pudding with custard from M&S. Now that’s the way to put on weight.
There is a way to put on weight.....and there is the M&S way
The sun shone but the wind blew in Eastbourne today and my three good things are:
1. Seeing the sea. It always lifts my spirits
2. Eating chips on the beach before heading for the excellent Italian ice cream bar
3. A 90 minute nap when we got home. Apparently it’s the ideal length of nap. I’m aching all over but I feel so happy inside
Those 3 things sound just perfect, gorgeous photo too. Yesterday
1 My twin sister and I went to a belly dancing class as part of my niece's hen do. It was lovely to be in amongst so many gorgeous young women having such good fun. York is notorious for hen and stag dos, bare bottoms up against restaurant windows used to be a thing....
2 Got a taxi home and the taxi driver was so laid back he was almost horizontal. He said when he was in the car his only job was to drive and look after his customers who relied on him to keep them safe.
He said he never comments on anyone else's driving or responds to abuse as the only things he can control are his own actions and feelings, and he prefers to feel calm.
3 Saw some of the usual suspects in our local pub and got lots of attention for my cropped blonde hair, no mention of hospitals or sickness, just how I like it.
It’s the wee small hours and sleep is evading me so here’s my three good things from yesterday
1. I had a check up at the hospital - the mid point of cycle 2 in the clinical trial I’m on. They had the blood test results from the end of cycle 1 and guess what? They show a dramatic drop in my cancer marker. My docs track an inflammatory marker called CA125 that goes up and down as the cancer grows and shrinks. The normal range is below 35. At the start of this clinical trial on December 27 my CA125 was 14,000. Four weeks later on January 22 it was 4000. It is, in the words of my oncologist, “very encouraging”. I’m really hopeful that the scan on Feb 18 will show I’m stable Mable.
2. I ate not two, not three but four chocolate ginger biscuits to celebrate.
3. I finished the last of 32 flower motifs for a crochet wrap I’m making for a friend. Now to start crocheting them together
What an awesome trio! Fabulous news and even more fabulous choccy ginger eating. Very impressive.
Glad to hear you have managed to finish the flowers too.
The important question is, have you left any chocolate ginger biccies for us? If so, put the kettle on, we'll be right there.
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