For people living with incurable cancer only
This group is aimed only at people who have had an incurable diagnosis themselves, as we have had feedback that they would like a safe space to share their feelings openly among themselves.
If you have a loved one with incurable cancer, you are very welcome on the Online Community as a whole, but we would ask that you respect the wishes of people with incurable cancer and not post in this particular group. Instead, you will find really good support in the Carers group, the relevant cancer type group and the supporting someone with incurable cancer group.
I could have told them I didn't think the chemo was working last few rounds.
Now referred to Marie Curie project who seem very professional and friendly. It is a bit strange like I have been attending BLAH BLAH hospital since 2015 and now it seems like it is all over !!!!!
They should have something like a wee tea party, whilst you are not going to recover the staff have been involved in your life closely over the last 3 years.
One phone call meeting with the Consultant, then BYE !!!!
I don't want to sound totally negative as I am now on a new journey which may turn out a positive experience.
I have already had a Reiki therapy treatment which was very relaxing.
Look to hearing from other friends on this new experience.
Dear Kenzie, I was sorry to read of the abrupt ending to your relationship with your consultant, this is a issue I have raised with my palliative care doctor at my local hospital. I have urged them to create a better way of transitioning patients from curative to palliative treatment by communicating better with their patients during treatment. I currently have a foot in both treatment and hospice care and at some point will transfer completely over to palliative care. You might be interested in the thread I created called “ how the hospice improved my quality of life” as the replies are very uplifting. I look forward to hearing your experiences with Marie curie.
I am sorry to hear you’re on to the next stage of your journey. It’s good to see you be so positive about it. I think you make a really good point. I think we rely on our health professionals so much. I know I do. An abrupt goodbye must be really tough. So the idea of a transition would be really helpful for patients. I have been involved in some work around end of life services with Macmillan. Would you mind if I flagged up this idea with them? good luck as you move on
What is a community champ?
Hi Kenzie12, I was sorry to read the way in which you were dismissed from your consultant, they could make this a more positive experience I'm sure! Just wanted to say good luck on your continuing journey. I'm sure you will find Marie Curie a much better experience than you expect! Please do take a look at Jane's (Johnty's) post!
Love Annette x
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