The Bell

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There I was, sat in a waiting area for a radiotherapy planning scan, 3 weeks from diagnosis, and over to the side, across some café style partitions, a mere 15ft away at the cancer centre I attended, a bell was rung and everyone around me erupted into claps, and those with the person cheered and took photographs as souvenirs. It seemed to happen every 10 minutes. I didn't know what is was at first but as the truth dawned, sat there alone, it was all I could do not to burst into tears at the realisation I would never get to ring that bell.

Until that moment I had only cried when told my diagnosis while having to lay flat on an A&E trolley, and later on in a ward when I pulled the curtain around me and lost it for 20 minutes out of sheer frustration at being told I could not have the prostate taken out so I could be decatheterised (a urology houseman failed to tell me I could have it cored out in a TURP operation instead), and then again when I got home and saw my cats and after 8 days away said "Daddy's home" and immediately thought of the old Cliff Richard song where the next line is "...to stay".

Yes, I can be and am happy for others, God it's not as if I don't want people to be cured of this wretched disease which took my parents, both of whom I nursed across 4 years, an older brother, and will me, but even so isn't it a little insensitive to have it so close to where incurable/terminally-ill patients might sit as they receive palliative care? I don't know what other hospitals are like but the otherwise excellent one I went to needs a rethink.

  • Oh, I forgot the important question.  Did your radiotherapy help with the pain? I hope it did.

  • Hi Harebelle

    Has your radiotherapy helped your pain? Or is it too early to tell?

    Hope you're doing OK.

  • I'm getting less pain in the daytime, but still a bit painful at night.  Crossf ingers it works. Thanks for asking x

  • Hanging in there!  Unfortunately immunotherapy didn't work out for me so am coming to the end of the line when it comes to treatment options.

    Unfortunately,  when you have Stage 4 lung cancer, the treatments they offer you are lacking compared to other stage 4 cancers.

  • Excuse my ignorance of lung cancer but transplant an option?

  • No. If its spread they won't do an operation of any kind.   I've noticed that the nhs will operate on Stage 4 in orher cancers.

    But lung cancer they don't.   

    I've never been able to get an answer as to why this is 

  • Not that it helps you but I’ve asked if surgery an option for the stage 4 renal cancers in my lungs with an equally negative response. 
    I’ve now reconciled myself to make the best than I can with however long I have left without treatment and quite frankly I have no interest in knowing how long that might be. Treat each day as my last and not waste any. 
    I sincerely hope you can find a way to feeling the same if no other treatment options available 
    So keep on hanging In there and be kind to yourself.   

  • Thank you Rojan.for your kind words.

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