I went through "radical and aggressive" chemo, radiotherapy and brachytherapy for approx 4 months in 2023 for cervical cancer stage 3C, told it had all gone by early 2024 but early this year told had tiny cancer showing in peritoneum lymph nodes, that they can't do surgery or radiotherapy because I have the limit of radiotherapy it is safe to have - so no treatment at present but when the cancer grows more I willl have chemotherapy but told it won't be curative. CT scans every 3-4 months. So far according to last scan 4 weeks ago it hasn't grown at all so still no treatment presently. Next ct scan in february 2026.
It has taken all summer this year for it to register properly and I am now feeling anxious all the time with the unknowing - they have no idea how long before it grows enough to start the chemotherapy - or how long my life may be. I am 75. I had hoped to resume my career as an artist, so far I am constantly so fatigued and upset I sleep all the time and am gutted with disappointment and in limbo all the time as I do not know if I am looking at 2-3 years or 10 years to live or what to expect as and when I have to undergo more chemotherapy.
I would be grateful to hear from anyone who has anything like this and/or can give me any idea about time scales or symptoms etc. I do not have any pain or sickness and have not had any all year which is a plus - however I cannot get my head around the fact of it being incurable and how that affects me in every way over planning anything or taking on a new pet for instance so I am constantly on my own not knowing what I can do about anything.
I am also still going through psychotherappy for trauma of historic abuse which affects my concentration and memory and as a result I have a disability with tech and IT so I hope this post is ok for this forum.
Thanks - Valerie
Hi Valerie, I really do not know what to say about your childhood experiences. I am pleased to read that you are having professional therapy.
The messages you have posted in this thread to me and others can be read by all of us in this group so you are doing everything perfectly.
When my circumstances changed and the doctors realised that my cancer had spread, the medical team in the room were just sort of looking at me with sad faces, telling me to stop my job and do nice things. I wasn’t really sure what time span they were looking at, so I asked….
5 years? They shook their heads. 4 years? I asked. Another negative. 3? Negative.
2? They kind of shrugged at this. Blimey, I thought!
Then when I saw my new doctor to see about palliative treatment, I needed to know whether having more treatment (which I didn’t really want) would be worth it. He was giving me 3-6 months without any more treatment and possibly a year if I did start the treatment. I didn’t really want any more treatment, but then 3 months didn’t sound like very long. So I have been on these new drugs since June. I should have had 9 treatments by now, but have only had 4 due to weeks of delays due to low platelet levels.
I think I would say it’s probably taken 5 months to finally get to the point where I had resigned myself to this situation. It’s rubbish.
And I have to remind myself that with or without cancer, none of us know when our time will be up.
Sending you lots of love.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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