Newbie & lost

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I thought I should say hello and introduce myself.

I found a lump in my left breast in late December. Had it biopsied in late Jan and I was diagnosed with Breast cancer (idc&Her2+) in early Feb. Was told that the biopsy to the one swollen lymph nodes came back clear, so hadn't spread, but would do CT scan. Good news (relatively).

The following appt with the doctor was completely different. The same doctor told me that it had spread to the lungs and location of the biopsy in the lymph node 'missed the spot' and that I would be seeing an oncologist to discuss my treatment options. 

I saw the oncologist (didn't like her) and my 'option' is chemotherapy. (Docetaxil + Phesgo & possibly steroids) I wasn't allowed to see the scans and she couldn't tell me how big they nodules were. She said she was an oncologist not a radiologist. I already have a heart issue and the drugs can affect the heart.

My lump was measured to be 57mm x46mm at biopsy. In the 4 weeks it has continued to grow. I've told both doctors and I feel they have brushed it aside as insignificant. (If the lump has got bigger, god only knows what's happening to my lungs). If the baseline data is incorrect then how can they prove the chemo is working?

Chemo is due to start soon. I have my pre assessment Monday and will get a date then.

To be honest I have other health issues and I am not sure my body can take the chemo, so my prognosis may not be good.

Feeling scared and lost

  • Hi Marlies A warm welcome from me to this terrific supportive Group. Honestly I think Eddie has already said most of what I would have said. I just wanted you to know that my prognosis after going straight to Stage4 incurable was 5-7 months. I told my oncologist I would try anything. She found a suitable Drug Trial on its first stage and although it did give others an extra 6-9 months, I am so lucky that was in 2013! Where there’s life there’s Hope and they are coming up with new drugs regularly for all kinds of cancer. There are others like me who will welcome you at a more sociable time of day. Hang in there, it is a roller coaster ride!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Cannot get rid of the emojies, I have brain mets, not bra mets- if only Joy

  • Hi Marlies,  I cannot add any more than what everybody else has said.  Here we are all in the same situation so can understand what it feels like.  I havent been given a prognosis I dont think I want to know because nobody can predict this.  I am fairly new to this was diagnosed in August 24 so learning from the wonderful people on this forum.  Anyway welcome.

    Lee 2 x 

  • Hi Lee, 

    one of the things I find encouraging in this forum is that so many of you have done better than predicted, I just do not yet dare to hope too much for myself. I suppose there will be some clarity on my repeat scans to review my treatmentFingers crossed I so much want to live a while longer as there is so much to enjoy!

    Marlies x

    1. Hi Marlies, we are not oncologists here but my very young experience here has taught me that a good attitude is crucial. When that fails, does at times, people are here to hug and support 

    Patrick xx