Strong to weak.

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I’ve lived pretty well on Pembrolizumab infusions and Axitinib tablets for coming up two years. Two years was my prognosis, maybe a bit more. Reaching this stage has flipped me over from active, sociable etc to being in a huge hole I just can’t pull my self out of. I want to continue to enjoy the time I have left but my extreme fatigue and tendency to cry at any time is holding me back. Gp gave me fluoxetine, no follow up, and it’s not helping. Rambling was my life (with my husband) but if I do forty minutes I have to go to bed and sleep! I’m really holding him back. I got an electric wheelchair which is good for pavements but not so on country paths! I got a tummy belt to hold my tumours from getting rumbling around in the chair which helps a bit. How do any of you deal with fatigue and being ‘grounded’ most of the time? I’m not used to complaining, I have usually just made the best of things but I don’t really see my life as worthwhile any more.

Noplanb over 2 years ago in reply to Elliekate

Thank you so much for this info, I’ll certainly look into it. xxx

anndanv over 2 years ago

Hi Noplanb, Welcome to the group no one wants to join but here we all know how you feel even if you have a completely different type of cancer, I'm afraid the fatigue is a very common thing.

Although your problem is tiredness, I'm sure your head is all over the place. I think the battle you have to try to win is acceptance of where you are now and try to look forward. It is definitely not easy and does take a while. I used to ramble, play tennis, badminton, do Tai Chi Chuan, loved walking and gardening. Now I have to do my garden in ten minute stints because then I have to lie down. Now don't get me wrong, I don't like it but I try to make the best of what I can do instead of dwell on the things I can't! It has taken a long time and I still have bad days where I feel useless etc but the good days outnumber them.

Go back to your doctor, there are so many different drugs for depression that once you find one that works for you, hopefully it will lift your spirit!

Our local Country Park has an off road electric buggy you can borrow but you have to book it weeks in advance, maybe the one closest to you will have more than one!

Love Annette x

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