Hi
I was diagnosed with Bladder Cancer stage 4 last year. I have 6 GEM/CIS infusions (until my body could take no more) which shrunk my tumour a little & I had a radical cysectomy (Bladder + prostate removal) January this year. Before the op, my oncologist gave me an 80% chance, after the op, it was suddenly 20% chance. I went onto a course of immunotherapy with a set of 4 infusions which were paused when I had liver problems. After a break, the infusions started again, but only 1 single treatment as I then got diarrhea which lasted a month. In June, I had a CT scan which showed me clear. But my most recent scan this month shows cancer returning in my lungs & pelvis. I was given 6-8 months. The oncologist has suggested a revisit to chemo & I now have to decide if I want to make my remaining time being ill with chemo. Last time I woudl be bed-ridden a few days after the chemo for 2 days). Right now at this moment, apart from feeling terrified, I feel relatively well. I have emailed the oncologist asking about drug trials, also if I can have the chemo at 50% strength, or maybe a different type of immunotherapy. My oncologist is not very forthcoming & not open to ideas. At home, I've been on a paleo & low GI diet to try to starve the cancer & today I've just started a 2 day fas with zero protein. My wife has been working tirelessly, cooking everything from scratch to keep the diet going. I'm taking some pathway blocking pills from CoC in London & getting some good advice & support from the private oncologist there. Right at the moment, it looks like chemo could be the only option on the table. This may mean I will be unwell for the rest of my life. Occasionally my wife gets suicidal, she is taking pills for anxiety & pills to help her sleep at night. Mty one wish is that if I die, that she carries on with her life, I am afraid that she may not.
