Walls closing-in inch by inch

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Hello Everyone,

The New To The Community forum pointed me in this direction so here I am. Just want someone to bounce off really as it's all getting on top.

Got told this time last year I had about 6 months with untreatable stage 4 lung cancer with spread to other areas.

Smashed the 6 months but things are undoubtedly getting worse. No drugs. No treatment. Just me and my bravado but boy it's getting tiring.

All I know at this point is that I do not wish to go back to hospital. Just come out after a really bad turn and it was traumatic.

I've got palliative care on speedial and hospice support is only a phonecall away but I'm very resistant.

I'm male, 53, live alone but have a cat who's my savior. I can vent on her but it doesn't seem fair so thought I could vent on here :-)

Don't know what else to say except kind regards to everyone.

mm

  • Hi,

    Welcome to the forum no one wanted to be a part of. There's a lot of lovely helpful people here who will give you support. I've not been here long but can see it's a nice group of people.

    Can your team give you drugs to help with pain, etc? If you don't need it right now you probably will at some point so it's best to look in to that. And don't be afraid to talk to the help out there and get the support when you need it. That's what they're there for.

    Welcome.

  • Hi and welcome to the group I know how tough it is living on your own and also try and get on everyday without trying to bother people so I know where you are coming from we are a fab bunch of people in here who will support you whenever you need us for a chat on everything you will always get a reply day or night 

    Flippen
  • Good morning mm

    there’s no need to feel your on your own we are all here dealing with the same issues, and we are all here to give support and get support so don’t be afraid to vent on here not the poor cat she doesn’t understand why you are angry all she knows is she loves love. We are all here so have a good rant at us anytime.

    Don’t let the walls close in on you push back, and push back had, your cat needs you. I know how your feeling right now, it’s important to remember cancer is not an exact science so you never know what’s going to happen for you. My advice do what you want to do and do it because it makes you happy and smile while your doing whatever. 

    I have 2 little dogs Hamish and Hattie they bring a smile to my face all day everyday. Hamish is a right little sausage full of energy, while Hattie is the bossy one, everyday they provide me with laughter and long will it go on. I’m sure your cat does the same for you, what’s her name?

    anyway I don’t want to bore you with my drivel so I’ll say have a smile today and message back if you feel like it.

    1. Donna
  • To be honest pain isn't much of an issue. I mean it does happen but it's usually quite acute and short-lived and I can sweat it out. I have liquid morphine to hand but to be honest I find the cat to be a better remedy :-)

    It's the same with my other symptoms like nausea, stomach cramps, the tumour playing-up etc. I can usually just sleep them off. 

    My palliative care team know all this and I'm sure have drugs on hand should I really need them. 

  • Her name is Marty and she's my hero even if she does have some frustrating habits like demanding cuddles just outta arms' reach usually when I've got my head over a bucket Slight smile

    Either she has no concept that I'm ill or it's her way of telling me to push back, hard. I like to think it's the latter.

    When I recently got back from hospital I was a wreck but comig home to her and hearing her purr was better than any drugs they could've given me.

  • Hi mm welcome to the group, we are all in the same boat at different stages. As you have, alot of us have gone past our sell by date, they are estimates. I've always had a cat, my last cat I had for 20 years, I've never replaced her my friend and confident. 

    Your cat is egging you on to keep going and trying to get you to get your head out the bucket !

    When my dad was ill our cat sat outside the bedroom door and wouldn't move, once in the room she stood guard till he recovered. Take care xx

  • Hi moltenmagnets and Marty, welcome to the group. Here is the exact place to come for a rant. Believe me it feels so good to get those feelings into words and press the send button, knowing there are people here who know exactly how you feel. 

    Pets are great for making you feel better. Our family and friends love us, but no one loves you like your pet. True unconditional love. I have a little dog, and she is my shadow, wouldn't want to be without her x 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

    Community Champion badge
  • Hello mm,

    Welcome to our little gang. We're all in the same boat so keep posting and it'll help you give it all an airing. Offload here. I'm pleased you have a furry pal to talk it through with. She will know you are ill. Rainie x

  • Hello Everyone,

    Just wanted to say thank you for all your kind words. Coming from someone who likes to keep people at arms' length I can tell you that those words stretch a very long way. 

    Off to the hospice tomorrow for a couple of days respite and so that their resident doctors can get to know me a bit better. I'm very dubious but they've persuaded me that the hospice is nothing like the traumatic hospital. We shall see. I've agreed to take an overnight bag but won't commit to anything more. Can't be away from the cat too long plus those burglars ain't stupid. 

    On a lighter note, two peevs I've picked-up along the way. Firstly, those phonecalls - all you've said is hello and the response is oh you sound fantastic today. And just like that I'm hunky dory for the duration of the call. It's like an instant fix. Who needs drugs.

    Secondly, ambulance techs who've been called out as an emergency, walk through the door and the first thing he says is can I use your loo. This has happened a few times and boy it irritates. Next time I'm gonna point him in the direction of the garden shed :-)

    It's just me getting older and grumpier.

    Good luck to everyone over the next couple of days. I hope all your symptoms take a back seat, at least for a few hours. 

    Kind regards to all,

    molten

  • Morning MM.

    On your peeve number one, due to not knowing what to say to you, of course they will say .....you sound good .... you look good.

    Rainieday on here that you have replied to had that experience of being told she looked well and said " maybe I will be on oxygen next time you see me and it will be more obvious" ..... brilliant.

    I don't want to blaspheme but didn't the big name upstairs say  " forgive them for they know not what they do"

    Bit deep for early in the morning I know.

    With the toilet situation say it has just been deep cleaned that day to avoid infection. Someone else will have experienced this and will have the definitive response.

    Our local hospice is like a private members club, they don't have a drugs trolley, they have a drinks trolly, true!

    I wonder if your cat can stay in your room.

    Of course you are getting older and grumpier. You can't help the first and the second is a pleasure to demonstrate at every opportunity. Best wishes.