Hi, just been told i'm likely to only have 12 months. I'm in a daze.

Hi,

Lasr November I was told that I had a life expectancy of about 12 months, if I had a good response to treatment. Here we are in July and apart from fatigue and peripheral neuropathy, I am off treatment and back at work. I've done what I can regarding practical preparations, as others have suggested.

I find the best thing for me is to try not to worry about the prognosis, other than sensible preparations, and to try to make plans to do nice things with my family and friends.

Regarding your mum, it's hard to know what to suggest, it does sound as if she doesn't want to hear bad news from you.

I hope that you continue to do well. 

Best wishes 

Welcome to the group. Out of interest, there is a pancreatic forum uk website which may interest you. Theres case studies too. Best wishes.Tony

Hi Doggymom71, I was also given the time up news recently and went numb all over- I have been given 6 months.

This group has been so great in helping to come out of the numbness a little as With the news I lost most of my thinking ability all I could think was I'm not gonna be there for my boys. I'm 41, single parent and my boys are 15 and 21. I haven't been able to make contact with my hospice yet but upon advice from here I've spoken to the Macmillan helpline just to offload my emotions. 

I knew my prognosis was not good from the start but to come so soon was still a shock. The pandemic delayed me getting legal stuff sorted and I sort of put it to the bottom of my stuff to do. But reading posts from others I have started to get the ball rolling finally. In a way it's a good distraction because for me less time to  dwell on the inevitable on my own.

As you have read lots of people out live there time given by medical teams. I hope that's the case for you too, it's good you have treatment going on.

Unlike me do not put off sorting affairs coz then you can focus elsewhere. 

Shebu

Can i ask how McMillan helpline was ?. Is it a counselling service or like signpost helps ?.

Thanks...

Tony

I wpuldnt call it counselling, I said I just wanted someone to listen and that what the lady at the other end did. but got the idea they can sign post or possibly do more from her questions, I told them I was waiting for my local hospice to contact me who will have some psychological help available according to my CNS who did the referral.

I would recommend them though from this first contact to just offload a little if there was no other outlet for anyone like myself

Thanks for getting back to me. Im also looking at Marie Curie. Ive looked at their website for details. Im awaiting some palliative treatment for bowel cancer. Not sure how doctors arrive at these survival figures. I think everyone is a different case. Best wishes to you 

<3 

Thanks Tony

just signposted me to other websites that i might find helpful.

Hope it helps. Take care