I was diagnosed with Anal Cancer December 2019 I had operation in February 2020 followed by chemoradiation from mid March until end of April 5.5 weeks every day this was a very aggressive treatment . When I had my first scan after that in June there was a small amount of activity after a scan in October that activity had increased, more scans then was told I would need a lymph node dissection as the activity was in the right groin, that was performed at beginning of December 2020 recovery was slow but was ok except left me with lymphodema in right leg and genital area. Further scan in February this year showed activity back in anal area and lymph nodes again on right side. I was then told it was incurable but they would try and maintain it. To say I was shocked is an understatement and I’m still trying to come to terms with it. I am about to have my 3 chemo cycle for a full day and a pump attached for 96 hours after which I feel totally washed out. I saw the oncologist on Friday who seemed optimistic that treatment might be working he’s arranged an MRI for end of month and if I’m responding to treatment will have a further 3 cycles.
how do others cope with this news and treatment, sometimes as my cancer is one of the rare ones only about 1200 per year feel out on a limb
Sandra x
I have no option but to accept it. Mine is rare to near illeocecal cacem, just one of a couple of hundred each year and probably explains misdiagnosis for Years. Mum was the same one of about 1900. Trouble
is rare happens to other people !!!. Best
