Hold on to your seats, just when you think you know what's coming next.
Hi everyone, some may remember my last post was 3 months ago and I was having a break after chemo. (It was lovely a few trips away health permitting) Whilst on my break I thought I would look into finding a specialist in squamous cell carinoma of the kidney, for a second opinion given that my hospital was sort of winging it and given my previous history. As expected there are only a handful and ended up reaching out to the Royal Marsden. Once my treating hospital sent all the relevant paperwork, they sent me a letter to say they had looked at my biopsy results and said they weren't a 100% clear as to the type of kidney cancer.
So after several hundreds of pounds Royal Marsden confirmed that I have a poorly differentiated urothelial cancer. They were really helpful and armed with more information I took the plunged and went to my neighbouring towns hospital. (So lucky to be right on the boarder and parents live there) Now waiting on another scan and test results to find out next treatment, oh what fun this is I'm thinking of sending my story into the TV networks or maybe it becomes long enough to turn into a book.
As always any advice on atezolizumab immunotherapy greatly received take care.
Hi Sweet21Pea I have literally just posted in the lung group, that we have to be our own advocates, and it’s he who shouts the loudest gets heard! So well done you for fighting your own corner. Should we have too? No, we shouldn’t, but as great as our NHS is, they are very very stretched, and we are all just numbers to them at the end of the day, no matter how good a relationship we may have with them.
Just a thought, but have you ever thought of writing a blog, we have a good blog section on the online community, will pop a link below.
