Terminal is looming and I don't like it, not one bit

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I was given 12-18 months to live in January/February last year.  I began feeling ropey about 10 days before my last Oncology appointment, and I've been going  downhill since.  It was decided between myself and the Oncologist that there was nothing else to be done.  I have stomach cancer with liver mets.  Today I went for an appointment and I had to have a wheelchair go get me there.  The slightest tasks make me breathless.  Just having a shower, and getting and washed and drying my hair made my completely unable to do anything.  I have had a breathless day and now I'm scared that might this is the beginning of the end.

Anyone else in the same sinking boat out there?

    • I've been to local hospice of my choice and they booked me in for a full body massage, and the community nurse has been today.  I feel supported now.
  • Thank you, nice to know you are here

  • Hi Mrs2rs,  you are very welcome,  and I'm so pleased you have the  community nurse, and hospice to support you, I to love a light full body massage, so I'm sure you will enjoy yours, and thank you, it's not only me who's here, we are all here for you, for each other,  whenever we're needed. 

    Eddiel xx

  • Thank you for your kind words

  • HiMrs2yrs, It is great to know you have got support, we all need it sometimes. Please keep in touch and let us know how you are doing. 

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Thank you so much for your helpful reply. I've been upbeat throughout this but hit the down button of late and found it hard to climb up again, but I'm doing it slowly. So sorry your cancer has spread, it's a quiet assassin. Fingers crossed for a little bit longer for us all. Take care x

  • Hi, Mrs2rs, your very welcome, and I'm sorry for the late reply, it's been an up and down week for me too, and if I  have helped you just a little, then that has helped me, and thank you for your concer, it's appreciated, sounds good to me my friend, more time to us all,  we both know it does no good feeling sorry for ourselves, but the down times are to be expected, but we still have good times ahead, which is where my thoughts will be.

    Eddie xx 

  • Hi Mrs2yrs,

    Unfortunately I am in the same sinking boat. I've been going downhill since November and ended up with a 5 night stay in hospital, getting home on Tuesday evening. I had a blood clot in my lung, plus a potential liver infection, although it turned out to be the liver mets causing the havoc instead.

    Last night I was told that are no more treatment options for holding back the cancer. I knew this point would come, but didn't think I was there quite yet. It's a lot to process at the moment.

    Thank you for your post, I'm grateful to hear your experiences, as well as everyone else's on this forum, it makes a difference.

    I'm glad you're getting the support you need. A massage sounds like a great idea! I've been put in contact with a palliative care team too to manage symptoms and provide care.

    Jen xx

  • Morning Jen, I am so sorry to hear you've been told this, but often doctors don't know all the treatments,especially the latest trials going on, I know a few of the guys on the forum have pushed their teams to find one for them, and with good results, but I know our conditions are unique to us, and it's good to hear the forum has helped and you have the palliative care team on board, they are wonderful people, as are you my young friend, reaching out to support others at this difficult time for you 

    Eddie xx 

  • Hi Eddiel,

    Luckily my oncology team have been very good and proactive about exploring every angle, opportunity and reaching out to everyone they know in the field to find any treatments available and they will continue to do so. So I'm confident that if something ever does become available, they will do whatever they can to get me on the treatment.

    Thank you for your comment,

    Jen xx