Diagnosed with terminal mucinous adenocarcinoma of the colon

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Been told prognosis is poor - 12 -18 months to live.

Feeling devastated and ill.

I live alone with no support.  No family or friends. 

Has anyone else this diagnosis? 

  • If you are attending for treatment such as chemo, or procedures like colonoscopy, you are not supposed to drive yourself there, as you may not be well enough to drive yourself back. The hospital should know this. 

    I was taken to and from hospital, and to Edinburgh to see my oncologist, by St. John's Ambulance. This was the only way I could get to hospital and back when I was having treatment. It was organised by my nearest cancer drop-in centre. If you do have a cancer centre nearby, you could ask them about transport. St.John's may offer a similar service in your area.

    Otherwise, you could contact your consultant's secretary, and explain your situation regarding transport. They may be able to put a little pressure on the transport organiser. Or try the PALS service at the hospital. 

    Hope you have some success!

    Hugs

    Kate

  • Hi Cheekkat I can understand them being draconian if it was out of laziness that you chose not to drive but If you dont feel well that is a totally different case. I did have a friend who had that exact situation and she had to drive as there was no other option. I hope you get it sorted out to your advantage . All the Best minmax

  • Hi  

    I'm very sorry to read of your diagnosis and that you find yourself here with us. I recognise your name from the womb group. I have read your profile. It is devastating for you to be given this news but try not to get too far ahead until you have had your appointments with oncology and colorectal. They may do more investigations to be able to make a plan of treatment for you. Once you have more idea of what will be happening, it may be easier to see a way forward.

    Your GP should have been informed of your diagnosis and it may be wise to contact them and ask for some support/medication etc to help you until things start moving with the hospital. I would also urge you to ring the Macmillan helpline. They will help you and give you advice on how best to help yourself at this stage. This is the link to contact 

    https://www.macmillan.org.uk/about-us/contact-us

    It must be hard to comtemplate the enormity of all this on your own. Please ring the helpline, there is help and support out there, it's just a case of knowing where to find it and they will help you with this. Very best wishes for you Cheekkat, keep in touch, don't do this alone.

    A x