I was treated for neck cancer which cleared but at 13 week scan, some mets to lung. There is v little metastatic disease (small lymph node involvement) but I’m now on palliative Immuno only. I’m 45 and otherwise fit and healthy. I’ve been careful NOT to get a life expectancy prognosis. I understand the reasoning but can’t get my head round the fact that there’s nothing that can be done for me. Is anyone n a similar position?
Hi MarkWFD, It is good to see you post. Good news that you are fighting for what you need but sorry you have to pay for it too. I was also on Palliative Care and my oncologist fought to get me on a Trial for a New Drug, she also managed to secure a lab that would pay for it under what they termed as "Special Circumstances" That was in 2013. So you CAN live with incurable cancer for a long time!
Love Annette x
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