Asymptomatic but incurable. Struggling to understand

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I was treated for neck cancer which cleared but at 13 week scan, some mets to lung. There is v little metastatic disease (small lymph node involvement) but I’m now on palliative Immuno only. I’m 45 and otherwise fit and healthy.  I’ve been careful NOT to get a life expectancy prognosis. I understand the reasoning but can’t get my head round the fact that there’s nothing that can be done for me. Is anyone n a similar position?

  • Hi Eddie, good luck with your op, I hope you get to Australia when you recover. My travel Germany France, Spain, Ibiza, Portugal,   Cyprus Turkey,  couldn't do Australia  to long a flight for me. But I hope you enjoy it. Xx

    Moi

  • Hi Guys, Eddie, I had a problem replying earlier also. When I clicked on Reply my username appeared but there was no box to write a reply in. This is my fourth attempt. I love Portugal but we don't go now because of the cobbled streets! Like you Moi we tend to stick to Europe, in fact we are off to Costa Blance next month to get away from this freezing weather! We have been going for about 20+ years, with exception of Covid. We used to go for 4 weeks, then dropped it down to three. Then last year because I had cellulitis we came back a week early. So this year we are going for only 2 weeks!

    We used to go to Canada and the USA but I couldn't manage the long haul flight any more, so Australia is definitely out for me!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Morning Moi, as we have always had dogs we kept to UK, which we love, especially beaches which at last count we have been to 177.

    Eddie

  • Hi Annette, I have never flown before, I am also bald and ginger so a holiday in the sun is not appealing, off to Aus "hopefully" as my partner goes every winter for 4 months to see her sister, she has SAD really bad and is a mess if she stays home. As i promised Sheila i would visit her sister one day and i don't want to break that promise now seems a good time. PS why were you up at 1am.

    Eddie

  • Dear Mark, After massive surgery and too weak for further treatment [was in hospital at the height of Covid], I was sent home to 'spend time with my family' on palliative care. When the doctor left after giving me the news, he wrote whatever he wrote in the ward book and shortly after the nurses all came in sobbing. I thought, 'Well, that's it then. I've had a good life. I wanted more, but I guess that's it'. And a week or so later I got sent home.

    I've just passed my 3-year sell-by-date anniversary and currently have a new exhibition up at a local gallery. Don't be brought down by words. Don't let cancer dictate how you live your life. Just live every day and tell it to **** orf. You never know what's round the corner and what new stuff is in development that would help your cancer. I've just booked a holiday. Do the same. Give yourself stuff to look forward to. Hugs from Rainie x

  • FormerMember
    FormerMember

    Hi  

    I'm sorry to read of your diagnosis and the lung mets which have made your case incurable. I agree with Mmum, in that the wording becomes unclear. Palliative care is a broad spectrum and is not the same as end of life care. For example I have had palliative chemotherapy, the chemo is the same chemicals that are given in all cancers of this type but palliative refers to the outcome - not a cure. My cancer is currently stable and has been since Sept 2022. I would say that there is treatment for you, but not a cure. I've heard it said that cancer is being treated more like a long term condition, but I think that is only in certain cases and how the disease responds to treatment.www.macmillan.org.uk/.../coping-with-advanced-cancer

    The link above is a Macmillan booklet which may help you. Would you consider counselling? Your specialist nurse can refer you or Macmillan is offering sessions, this is the link

    www.macmillan.org.uk/.../bupa-counselling-and-emotional-well-being-support

    As anyone of us in this group will tell you though, it takes time to get your head around this. Best regards

    A x

  • Well said Rainie!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Hi Eddie, Did you know you can now get passports for your dogs! I was told not to fly at the beginning of treatment. So we got a train from Glasgow to Newcastle then took the Ferry to Amsterdam to see the bulb fields in Spring! We have also been to a few Christmas markets but flew there.

    Am I right in thinking when it is winter here, it's summer in Australia? I was speaking to Pet and we had slow in Scotland and she had lunch on the beach in Australia because it was their summer!

    I am fair with blue eyes and have Malignant Melanoma so I cover up and stay in the shade when the sun is out! This is why we don't go to Spain in summer but always go February and/or October if I'm able!

    By the way, it is totally normal for me to be up at 1,3,5am or after that as I don't sleep well due to pain but I'm used to it! I usually catch up on the posts here, do some jigsaws on my iPad then read my Kindle books! I'm the Group's Night Owl! lol!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!
  • Hi there, just in case you all would like to know...we have 33 degrees atm and later today we will go swimming. Oops sorry lol

  • Hi Pet, Oh rub it in why don't you! LOL! Our temperature at the moment is -3 but it is going up later in the afternoon to a HIGH of  4 degrees! A big wow! They say it's going to get colder towards the weekend but don't feel sorry for us, just you enjoy your swim!!  Although you are missing watching the birds in the morning trying to drink from a frozen bird bath and the grass is white. The gardens look lovely with white bits on the plants, trees and shrubs. So I'm not jealous at all because 23C is too hot for me, let alone 33C! You just enjoy it!

    Love Annette x

    Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!