“A SiT’s Progress”

FormerMember
FormerMember
  • 369 replies
  • 30 subscribers
  • 51763 views

My apologies for my recent absence from our little community – there are two reasons.

Firstly, I was quite deeply offended at the recent unnecessarily heavy-handed manner in which the powers that be dealt with our “offensive” behaviour – I think they maybe should recognise the specific circumstances that bring us together in this place and cut us a little slack…

Secondly, whilst all of that palava was unfolding, I was also going thru the Scanxiety nightmare of my 9 month test & scans and whilst the CT Thorax/Abdo/Pelvis report was Stable Mable, the CT Brain reported 3 mets which, as many of you know, in late-stage SCLC usually signifies the beginning of the end…

And so it probably is but my Oncs are not letting me go without a proper “tear-up” as the proposed new treatment is RT Brain (planning session next Weds at CUH), followed by a second go on the original chemo of Carboplatin/Etopside (which apparently is effective at crossing the brain/body threshold) and continuing with the Atezolizumab. He even said that there are “other” possible treatments after that…

It is quite interesting in that SCLC is usually not treated with Atezo and coupled with the incredible response since diagnosis, my onc said that all normal bets are off because this is new territory, even for them… We’ll see…

Much Love & Huge Hugs

Stay Strong

SiT

  • You're in Tvman. You know the rules .... there ain't no rules. Lets rock and roll.

  • FormerMember
    FormerMember in reply to tvman

    Holy Roly Poly...

    Who said you can't teach an old dog new tricks? Well they were very very wrong!!!

    Get DOWN TvDawg & you GO - just DON'T tell us anything about it... NOTHING AT ALL!!!!!!!!!!!

  • FormerMember
    FormerMember in reply to FormerMember

    I am on maintenance now atezo once every 4 weeks for the next two years or until I keel over whichever comes first.  As SiT says, in and out in an hour - it’s great!!

  • Thats sounds like comfortable deal to me Maz, am I right, or am I very wrong?

  • FormerMember
    FormerMember in reply to Norberry

    Hi Norbs - well I’m glad it’s taking less time just wish I wasn’t spending so much time asleep!!!  It ‘s the first one where its Atezo only and I’m grateful I don’t have half the pharmacy to take home with me - I told them I was going to rush off before they changed their minds!

  • Well, I'm hoping for the bestest ever for you.xx

  • FormerMember
    FormerMember in reply to Norberry

    Thank you Norbs xxx

  • FormerMember
    FormerMember

    So... It transpires that I have had a minor epiphany which I would like to share...

    You know how with this bloody disease we are ALWAYS waiting, waiting,waiting! ALWAYS!!!

    Be it the next scan, results from the scan, your next treatment, the next Onc appointment and so on and so forth which has led to me putting off decisions or purchases - well, WTF am I waiting for? Just GET. ON. WITH. IT!

    With that uppermost in my thoughts I decided to hang the cost and everything else and bought my new leccy bike yesterday!!! Yaaayyy!!!

    It has to come from Holland so will be a few weeks yet but it IS coming and I WILL ride the bloody thing!!!! Hahaha!

    It's a VanMoof S3 if anyone is interested, particularly interested in it's smart capabilities which are marvellous - reports/photos (& Police incident reports) on accidents etc WILL be shared in due course...

    Stay Strong 

    SiT

  • Brilliant, I will look it up and aquaint myself with it in case it comes to me. Thanks mate.

  • FormerMember
    FormerMember in reply to Norberry

    My sister has already bagsied it for Espana in return for unlimited hols at her place - I think she's maybe getting the better end of it...