Hi lovely people
I went for a 2nd opinion consultation yesterday with a consultant surgeon. I was 99% sure that he would say the same as my team in Cambridge - operation is not possible at this stage as both teams have the same skill sets.
He surprised me by saying he think it is possible to operate with curative intent. He thinks the chemo had been working well and keeping things stable. My lung nodules are invisible and I can have ablation if one is to grow later. The operation is going to be massive and he will remove everything in the pelvic area including the bladder. So I will have two bags to manage instead just the colostomy bag. I think I will get used it in due course.
I think NHS criteria for this big op is no metastatic disease anywhere. He said this is outdated by 10 years. I am just grateful that I can private health insurance to get this chance.
I thought I should be really happy with the opportunity to cure. But I actually feeling somewhat nervous instead. I have made peace and accepted my incurable diagnosis and the pathway it leads. Now everything is changed again. Not sure what to think.
Thank you for reading and hope you all have a relaxing day.
Stella x
Stacy if you email
They can answer all of your questions regarding the forums blogs.
if someone wants to subscribe to a blog, do they just hit the "Turn blog notifications on"
Yes.
Do you get notifications when a blog you follow has a new post?
Yes, once you’ve subscribed to it. It just pops up in your notifications in the same way a reply to a group discussion you’re involved in, does.
The blog pages here, aren’t really “proper” blogs with all the functionality that comes with the off-the-shelf blogger sites. Eg the whole “publish” and email notifications to your followers, you mention.
But there’s also a flaw with the blogs here. They don’t have the security around a blog that you would get from Wordpress, substack etc. Anyone can post on your blog. This happens when someone is reading a blog and hits the “post now” button. You have to e-mail the moderators to get it removed. It’s very transparent and you can see that the blogger hasn’t posted it, but I found it very frustrating and a bit upsetting at the start, too. It feels like someone has written in your personal diary 
. They don’t mean to, of course, but the blog area is a bit unclear and confusing imo. If it was a "proper" blog site, it would have that privacy built in.
Here's how I've discovered stats on the blogs.
From any blog post, on a desktop, on the top green Mcmillan banner click the pencil in the black circle icon.
Then it's Manage Blog > Posts and you see all the blog posts with the number of views.
I'll have a look later, and see if it's that different on a phone.
Edit later - I don't think the stats here are accurate any more. When I've looked before it's been around 50 views which seems reasonable for a site this size with this publicity ie none!
