Surprising 2nd opinion

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Hi lovely people

I went for a 2nd opinion consultation yesterday with a consultant surgeon. I was 99% sure that he would say the same as my team in Cambridge - operation is not possible at this stage as both teams have the same skill sets. 

He surprised me by saying he think it is possible to operate with curative intent. He thinks the chemo had been working well and keeping things stable. My lung nodules are invisible and I can have ablation if one is to grow later. The operation is going to be massive and he will remove everything in the pelvic area including the bladder. So I will have two bags to manage instead just the colostomy bag. I think I will get used it in due course.

I think NHS criteria for this big op is no metastatic disease anywhere. He said this is outdated by 10 years. I am just grateful that I can private health insurance to get this chance. 

I thought I should be really happy with the opportunity to cure. But I actually feeling somewhat nervous instead. I have made peace and accepted my incurable diagnosis and the pathway it leads. Now everything is changed again. Not sure what to think.

Thank you for reading  and hope you all have a relaxing day.

Stella x

  • Hi Stella,

    Honestly, that's a great question. I think I'd be pretty anxious either way, but maybe not quite as bad since the fear I have of the main surgery wouldn't be there. If I said no to the surgeries, there would still be a part of me that is worried where else in my body it will continue to spread such as my other bones, lungs, and even my brain is a possibility for the type of cancer I have. The fear of me being in even more pain in some other location scares me as well. Being here as long as I can for my niece and nephews is still my biggest influence in my decision.

    ~Stacy

  • Aw Stella, sorry to hear that you are going to need another bag to manage but I think you'll cope well as you are already managing your colostomy bag with a positive frame of mind. Have you been given a rough timeline for your operation?

    Tvman x

    Love life and family.
  • Hi Tvman

    I am going for examination under GA on 15/12 then the main operation the week of 5th Jan. will be in ITU for 5 nights then 3 weeks on the general ward. 
    I see this like exams at university. I know I will pass but still need to get through it.  X

  • Good luck for tomorrow!

    Patrick xx

  • All the best for your consultation tomorrow Stacy , everything crossed for you x

  • Thank you for the positive thoughts Stella and Patrick, I can use all the good vibes I can get. We'll have to go back on Friday and get the results and see what my future holds, so the next few days are going to be pretty rough on me, and my sleepless nights will only be worse...

    ~Stacy

  • Good luck today Stacy hope you managed to get some sleep last night xxx

    Lee 2 x 

  • Good luck from me too Stacy, it's good that you'll get your results on Friday, not too long to wait 

    Tvman x

    Love life and family.
  • Happy thanksgiving  hope you are having a lovely time with your family. Xx

  • Thank you Stella, most of our family that's in Ohio are coming here to my parents house this year for both Thanksgiving and Christmas, so it'll be nice having everyone here. I slept very little last night, it's almost 5:30am here and I'm wide awake, hopefully I can take a few quick naps this morning before everyone starts arriving. I'll update this thread when I can tomorrow with what we hear from them.

    ~Stacy