Hi all so I contemplated joining for a while and bit the bullet . So I’m 37 and from the start unfortunately my diagnosis has just got worse and worse . Although I have finally started immunotherapy last week . So I’ve gone from ultrasound picking up kidney mass to looking at my Ct to noticing it had spread . A failed biopsy and finally a good biopsy that gave me a diagnosis of collecting duct kidney cancer . One of the rarest forms there is with little to no information. And any there is does not make for good reading. I still hope the biopsy is wrong or that the immunotherapy and possible chemotherapy will work . I had a phone call from a normal doctor today who’s going to give me the dreaded sr1 form to get pip . It’s something I feel I’ve been hiding from as me and my wife didn’t want that as it makes it feel more real that there’s a chance I’ll die . I forgot to add that my wife is also pregnant with our first baby . It’s a mental year to say the least
Hi Kyle8 welcome to the group but so sorry you have found yourself here at such a young age. Please do the pip form, it may give you and your wife more chances of weekends away.
like Ellie said hope is a very powerful word, and has seen lots of us through dark days here. Keep the hope and you will find the strength to see you through.
