So I was diagnosed May 21, and given 3-6 months and here I am 18 months later, still kicking the can down the road. I also don’t plan on going anywhere soon either. My primary is lung and with secondary being spinal and the spinal one is the bugger that plays me up the most. Currently pain free after being given Ketamine and being slowly weaned off my opioid medication by the hospice. Don’t get me wrong I am still on some opioids but definitely not as big a dosage as I was previously. My local hospice has been amazing in so many ways e.g. pain management and now medication management, and just goes to show that they are not all about places of dying but they are so much more about being places of living. The reason I am posting is that in the last 18 months my only problem is that I don’t seem to get on with my oncologist who seems to be all about closing down routes of treatment etc and not about living. I am 56 and my best life is still out there and I still want to live it, and feel that I don’t need his approval to do that. Every appointment I push, and I will not stop pushing to make sure that I get every treatment or trial available that will keep me curable. I think this is only the right thing to do. Any ideas or advice greatly appreciated and many thanks.
First name with both my oncologists. The nurse practitioner called him Dr S once and I was like "who?! Oh you mean Mark!". 
