Living with incurable lung cancer

Hi i really do not have the answer for you, i get on really well with mine, have had the same oncologist since day one. I always ask her and she always answers me, there is always some thing out there which we can use.i have faith in her.

I am incurable, from day one, and will never be curable as such.

Does not matter how many combos of treatment i have, still never be curable, really, they are just prolonging life, for as long as possible.

I hope others come in with their advise, though evenings can be a bit quiet at times.

You are most welcome to this group, and will get a lot of support. xx

Hi thanks Ellie, evenings are the worse for sure but like yourself never curable but treatable. I am due to have another course of radiotherapy to prepare me for a trial so will hang onto that hope for sure. Hope is such a powerful thing that I hold onto, I mean what else do we have?

Thanks for getting back to me as responses are always nice to receive especially like you say of an evening.

I am also waiting to start radiotherapy again, was told , just over a week ago, i was gutted, but have to get on with it.

I also have lung cancer, and now gone to a bone, in pelvis,, and my biopsy is being tested again, for another drug out.

People pop in and out when ever, but some one always about, that's for sure.

We do support every one, we moan, rant, laugh, cry you nae it, we all been there at some point.

Hi Paul!

Welcome here...i also have lung cancer terminal..for 7 years now. 

To your problem...any chance of changing the oncologist?? If he's not on your side, it makes it so much harder. You way to young to give up!!! 

Pet

Hi Paul and welcome to the incurable group, it's a shame we have to chat under these circumstances, I agree with Pet change oncologist, i would not like to fight for a better way forward, never meet mine face 2 face but we get on well, he has a plan in place should current treatment stop.

Im not surprised that you are beyond the date you were given it's all just guessing on their part.

If you tap the little icon next to our names you can read our profiles. All the best Ulls 

Hi Paul, I'm 53 and get on great with my oncologist.  You really need to operate as a team in open minded discussion with the same goal, of keeping you alive for as long as possible.  I think like the others have said I'd be asking for a new oncologist.  The prognosis is just a guess based on everyone's else's data and treatment available at the time.  I asked and was advised 5 years, but now I understand so much more about it I won't be bothering to ask again because it doesn't add value.  It's my 1 year anniversary this week on the 24th.  

Nice to chat, and let us know what you decide, Claire xXx

Hi Claire, thanks for the message so do you think it’s worth asking? I have already asked and felt it was a case of move hospital rather than move consultant, because he said that as they all work together it might not be a good idea. Moving hospitals is a big up move considering we are 18 months down the line already #veryconfused

Hi,

when I suggested moving consultant he advised it might be a case of moving hospital as they were all closely working together in my current hospital. I didn’t know how to answer this as the next cancer specialist hospital is in Liverpool.

Rock and hard place, next time you see him take someone with you, be tactful let him know you relly on him to keep your treatment right but you don't understand the decision, could he explain it to you, and how he see your future treatment planning out.