An idea, I hope with some merit.
Our lives revolve around blood tests, scans etc. People do post that they have a scan in two weeks or whatever, everyone reading the post thinks 'I must ask after this' then the dates get lost or the memory fails.
We are all desperately worried and interested or just nosy about these results so we can discuss or sympathise or support.
How about posting your results on the day or the next day when they are received? You can still post advanced plans but this way everyone is current.
I think its a great idea but I do have an inflated sense of my own importance. This could be my swansong legacy when I get thrown off for using grammar after my name! Mind you, I'm not doing that anymore.
Norberry ... dandelion, postie, hoare frost.
Hi Pet
That’s brilliant news! Long may it continue for you! My consultant says immunotherapy is a wonder drug solution for some patients.
I am now on my second month off nivolumab. Getting some thyroid side effects which they trying to sort out but otherwise it’s pretty kind. Scan booked for end of May to see whether it is working for me.
best wishes
Nigel x
Phone call yesterday instead of going in to the clinic due to covid cases increasing.
First CT scan after ipi/nivo started. Both tumours showing shrinkage. I'm my consultants best responder he tells me. But I am sad for this continual fog that's hanging over me. My Consultant is moving on to a new job and I'll be getting handed over to new consultant. More change. Urgh!
Mmum, That's great news. I understand about the fog hanging over us but we do get sunny clear days. Horrible to lose a Consultant you like and trust, hopefully new one will be good too.
Hugs, Barb xx
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