Morning all, we have a dusting of snow today, looks lovely although it's only 1*
After the initial shock of my brother's diagnosis and the disappointment of my last scans showing disease progression in the brain & liver tumours things have settled down.
My brother is having 4 cycles of aggressive chemo and then a break and repeat PET scan to see if he's stable enough to be offered surgery which he's been told is his only chance of survival. Nothing's definite till it's definite as he's also in a tier 4 area and the hospital is stretched to the limit.
I started my 5th line of chemo, oral Capecitabine, to try and slow things down. The 1st cycle was ok but I had problems straight away with the 2nd cycle. Half way through & having only managed a little over half the dose I rang the chemo nurses and was told to stop taking it. I had constant nausea, a day of vomiting despite medication, mouth ulcers, palmer/plantar syndrome, so bleeding finger tips and painful feet like walking on broken glass. I was alternating between no sleep at all to 14 hours one night and could not get warm.
I've heard oral chemo referred to as "chemo light" but that certainly hasn't been my experience. Norberry if I wasn't such a lady I would swear!!
I'm seeing my Consultant on Thurs and have no idea where we go from here, or even if there's anything left to offer. I could have stronger medication to manage the side effects, perhaps steroids, but that medication has it's own side effects....
On a positive note my hair, eyelashes and eyebrows are growing back and we've got the pain management under control 
xx
