More good news

Heya

Give me the name of a couple of them and I'll look them up on the app to see what it says. 

I remember reading something about controlled meds, but I can't find where I read it now. Lol. I think it just said they'd send it out needing a signature. But I'll keep looking. 

Lass

Xx

From the Lloyd's website regarding Echo, the FAQ page. 

"Can I order controlled drugs or medication that needs to be stored in a fridge?

Hi Lass

try buprenorphine patches 

Thanks! 
x 

9 different brands starting at 5 micrograms an hour up to 70 micrograms an hour available!

Lass

Xx

that's amazing news xxx

Great news just What is needed.x

Thank you all for the rousing cheer. I’ve been basking in the news all day. It’s a huge relief, possibly more than I’d explained. 

When I saw my oncologist on Tuesday we had a disorienting conversation. Two weeks previously, the junior registrar had told me that the MDT has discussed my most recent scan from February and it looked stable. But she didn’t have the full report.

On Tuesday, my oncologist had more detail. The scan did show the cancer was stable but it was stable in doctor speak. Technically this means the cancer has grown by less than 20% and the more detailed report showed the liver tumours had grown a slightly. So if the next scan showed more growth and the CA125 was rising, she said, I’d be off the trial and on to weekly chemo. But, she added, the growth was measured against a scan in November, a full month before I started the trial drug. There was no way of knowing whether the growth occurred before I started the trial and stopped with the new drug or whether it’s been growing steadily. I think the latest CA125 gives us the answer. Hurray! 

Tinalay I do have a great relationship with my oncologist.  I’ve got to know her as well as one can know a doctor in the year she’s been looking after me and we get on very well. The trials unit is kind of a special place where you get very personalised care and she’s a very special doctor. She went out on a limb for me to get me on this trial and I can email her anytime. I’ve been able to help her out too, for example writing a lay summary for her own research project. She’s a senior registrar at present but I don’t think it will be long before she’s a consultant and she’s going to be brilliant. The women in her care are very lucky. 

ruthjp great news you got your levitanib and by post too. Hopefully I’ll be able to get my drugs in the post too in the weeks I don’t need a scan or echocardiogram. 

Lass thanks for the info. It’s an interesting option. I’d still have to get to the surgery to get the paper prescription from the sound of it. 

Sleep well everyone 

xx

Does your GP surgery not do electronic prescriptions? Most English ones do, or are in the process of switching over, it should be happening in Scotland next year I think it is.

So as my GPs does, then I just click the meds I want, hit request, and then their system talks to the one at the GPs, and the prescriptions are issued. The system picks it up, is then downloaded by the pharmacy, and they then make it up and post it out.

When you're signing up, it asks which surgery you're with and you pick from a drop down. I'm assuming it will only show surgeries that have the electronic system. So it'd be quick and painless to see if it was a goer. 

Lass

Xx

Hi Lass

Yes my surgery does electronic prescriptions and they are sent to the pharmacy for me to pick up the meds. But if I understood well, the ECHO app wants a paper prescription sent to them for controlled drugs? Maybe I’m being an idiot here. Entirely possible. 

xx

Yes Lass I was in fact being an idiot. It says electronic scrips are fine