Hi folks
Unfortunately I was admitted again to hospital last night.
I am finding things very confusing I know things are not often straight forward with cancer but I think that because i seem to have 2 possibly unrelated things going on I am not moving forward as usual. There is also the new thing where medics are saying that because I have been fighting the cancer a long time my resistance is not good anymore.
However I do feel that this is a simple case of me having just caught an infection and need fluids and anti biotics then back home but because I saw different specialist that seems to have got lost along the way. The pain has racked up this time and I know I have been lucky up to now with this. Last night I was told cancer is painful.
I am really unsure what is classed as bad pain by the medics and I find myself saying no when asked if I am in pain . I am getting severe but short bouts of pain mainly and I have no idea what can be done for pain.
At least I am not neutropenic this time.
Looking forward to escaping again soon but might have to try and get some more information from someone about the future as I seem to be getting some strange comments when admitted now.
Not sure if I am imagining it but in the past IV fluids and antibiotics were up in next to no time but in A&E it took 12 hours yesterday and long times are left between.
Noticed lots going on in the community lately and I am still very much appreciative of having this available at times like this.
Hi Maz
You're having a time of it, aren't you? I'm dismayed to hear that you are having bad pain and the staff can only give you paracetamol but at least it's dulling it a little. Hopefully the palliative care team will be round soon to get you what you need. You won't be in any rush to move away from the ward you're in will you? When you get nice staff who treat you respectfully, as they should, you appreciate them all the more, and there's no light shining directly in your eyes to keep you awake!
I'm sorry to hear that you're having episodes of rigors, (had to look that one up), accompanied by severe pain when you coughed whilst your sister in law was visiting. At least she's taken the time to see you, and she's giving compliments out freely so she's got to get brownie points for that, yeah? Send her round to see me please lol 
Thanks for your concern Maz, re my blood, very much appreciated. I didn't get a phone call from the hospital on Monday night but I don't know if they ring if they have already told me the week before. They rang last week because my haemaglobin was less than 100. However, I had a phone call yesterday (Tuesday) morning from my gp's receptionist, to tell me that it is 100. Neutropenia is neutrophils below 1, my number is 1.05, just scraped it! I'll feel more confident now next Monday when a little 3½ year old is on my knee, germs bouncing around him! Oh, the receptionist chucked in a couple of strange ones - blood sugar level is a little outside the norm and in two months I have to have another thyroid function test. Both of them are new ones to me.
You're like me, losing track of time, last night at 11.15 my wife woke me as she was coming to bed and I didn't know what day it was or whether it was morning or night. I plumped for Saturday, 11.15 am, how wrong I was, but I didn't get up and get washed! You get the better of me there Maz.
Hope you can get on top of that pain Maz and can get home to your own comfy bed and surroundings asap.
Tvman xx
