Hair falling out

Hi Flippen 

thank you for your supportive words and describing your experience. 
lovex

Hi Tinalay

it was great to read your view of things . I had thought (intellectually rationalising my hair falling out) that I would wear hats and scarves. Thinking about it a bit more I M going to consider a wig and go from there. Take care xx

Hi Daloni

i Googled you and found the Guardian article which was really helpful. Take care xx

Hi 

i found losing my hair really odd ,never had good hair ,but so wish i had it back 

it is really upsetting ,not vain and not silly 

in my nhs hospital there is a special lady who orders wigs and fits them for you ,if you are eligible re drug treatment and side effects 

i lost my hair all over my body ,some has grown back but not all ,i have to fill in my very sparse eyebrows ,but feel like me when i do ,i went to a feel good look good talk at our local Macmillan ,it was excellent ,recommend it

my hair has grown back with a large very thin area in the front ,so i still wear my wig ,i feel very comfortable with it ,and never have a bad hair day ! 

I tried hats and scarves but felt self conscious and feel more confident with my wig ,it is a different style to my real hair ,I don’t care that people know i m wearing it 

Good luck

xxxxx

janet

I also meant to say you have had an awful time ,so please look after yourself and your lovely son .life is shi. Y sometimes ,and has been for you and your son

xxxxxx

Thank you. The warmth, affection and support I have received from you and everyone else in the group has really,really helped me, and it’s my birthday today. I have had a great day with my son and my cousins who came down to see me and take me out for something to eat. Xxx

Hi Tamencio, I have just seen your first post under this heading or I would have replied sooner!

I can really relate to what you are feeling with loosing your hair! When I started on the trial drug after I was diagnosed, they gave me 22 sheets of information of all the side effects that "could" happen and hair thinning and hair loss were the two that stuck out. However after the first few months I had other side effects but my hair seemed fine, I forgot about it! Then at 8 months I noticed a huge difference when I washed my hair, it had got so fine you could see my scalp through it! To say I was distraught would be an understatement! I had coped really well with all the appointments, scans, the other side effects etc but to me this meant people looked at me and knew I had cancer even if I didn't want to tell them. I got a coupon from the McMillan nurse and took it to The Maggie Centre where I saw the hairdresser and was fitted with a wig! The mistake I made was to try to find one that looked most like my own hair! I've seen many people wearing wigs and I think it's better to go for something completely different as if you've had a restyling! I wore it on holiday and started to use Plantar 39 shampoo which was recommended by the specialist hairdresser. Eventually because the wig kept slipping, I took it off after giving myself a good talking to! Would I rather still be here without hair or not be around with my family? I got what hair I had cut very short (by the same hairdresser) and never looked back! I think of it now as my Major Blip and still don't know why I felt like that. Others have such a lot more to contend with!

Your son sounds just lovely and will be happy to have his mum around whether she has hair, a wig, or not! If he's happy, you should be too but it's not easy! I hope your chemo works it's magic for you and you can watch your son mature into the lovely young man I know he will be!    Belated birthday wishes and many more of them!

Hi Tamencio

I echo everything that the good lady Annette has said, and I also regret that I wasn't around to wish you a happy birthday. Truth is that my brother came down to take me out for a long chat and lunch. I used my manual wheelchair yesterday because the lunch venue was pretty flat. 

So after my MacMillan exercise class the day before and the effort of pushing myself around yesterday I was pretty tired last night and went to bed before you posted. This is my second time awake because of nerve pain so I thought I'd read some messages that I didn't read the first time. 

I hope you had a great time with your family and had a lovely meal. No doubt you'll wake up and reflect on your day with the family, Another year notched up!

Take care Tamencio

Tvman x

Hi Tvman, Just wanted to say I'm pleased you had a nice day with your brother but why did you not let him push the wheelchair for you and then you wouldn't be just as tired afterwards! I actually don't have the option of pushing myself in my manual w/c although it does have large wheels to enable self propulsion. Between my arm that has a metal pin from shoulder to elbow and the osteoarthritis in my wrists, I find it almost impossible! I hate being pushed but I've no option! 

Tamencio, I hope you are feeling in a better more positive frame of mind this morning! Just remember, with or without hair, you are still you! I do hope you get a helpful hairdresser! Good luck!

Well, I've finished a few large jigsaws on my iPad app and read a couple of chapters in my book, had a cup of hot chocolate so now I will maybe get some sleep before my alarm goes off!

Thank you Tvman 

it was a nice day, enjoyed by everyone, especially me! 

take care. x