Hi all,
I haven't been about much as my laptop decided to play silly beggars whilst we were on our holidays and is at the computer shop waiting to get to the front of the queue to get fixed.
I struggle to type on my phone so haven't posted but I know a bit how my computer might be feeling.
Six months ago my CT scan revealed an oedema of unknown origin in my right abdominal wall. By a weird coincidence my largest tumour (or cluster of tumours) is in my right abdominal wall. The oncologist referred this to my GP who wrote back asking what they expected the GP to do about it. They agreed to monitor it. My next CT scan report was not ready until the day after I saw my oncologist so I did not know how big it was or if it had grown. What I did know was that my right hand side was getting more uncomfortable and I was getting occasional pains.
I started using the co-codamol prescribed for my arthritis to help me get to sleep and when it wore off and I woke in the middle of the night I would take some more and get a few more hours sleep.
My GP prescribed water tablets to try and move the fluid but this quickly dropped my blood pressure and I started to have dizzy spells. I went back a few days later and he adjusted my other medication and it has improved although my BP is still down.
The pain has been getting more persistent and I have been tired and not able to get on with anything, completing the circle leading to me feeling very down.
I saw the oncologist on Thursday and it must have been apparent that I was struggling as he has ordered an early CT scan to see what is going on and prescribed me the higher strength co-codamol. I know that this is nothing compared to those of you glugging oramorph but other than my treatment it is the first time i have been prescribed anything for the cancer rather than the side effects of the medication.
I'm not so worried about what they might find as I just hope to get to find out what is going on and get a plan. I figure it is either the oedema or the cancer. If it is the oedema they can drain it, if it is the cancer there are other treatments although I would obviously be sorry if this one had stopped working.
I took the first of the higher strength painkillers today and haven't noticed much difference yet but I will see how it goes.
I'm waiting for my CT date now which they hope will be within two weeks.
On the plus side I have been to the dentist and hopefully my missing tooth will be replaced by another crown but this one on a post into the root that remains from my broken tooth , in the first couple of weeks of November so I should be able to smile properly by the time of the meet up in York. I hope to see lots of you there,
All the best Gragon xx
Hi Daloni
I completely understand, I'd recommend you for Mum of the year if you were my mum. I know someone who that happened to here in Northern Ireland. She has 6 children, all girls, 4 of whom have Lupus. She's a nurse who worked mostly nights, so quite often she stayed on in the hospital because one of the girls had been admitted overnight. I knew 5 of the girls very well, I worked in the area so I met them quite often. Tbh I thought there were 5 for years, I didn't know that there were two identical twins lol.
Well, because the girls were very close to their mum and were proud of her dedication to them, they entered her for Mum of the Year and she won! Good for her.
I don't use an iPhone, I'm Android, but my son works in web design. Luckily he's still at home so I can tap into his knowledge 
I look forward to letting you know that I've found a program that can deal with the best accent in the UK. There's wishful thinking!
Speak soon, Daloni.
Tvman xx
