ITS BEEN A WHILE FOLKS!!

Hi Annette, Thank you for inquiring. 12 days post-surgery and still await notification of biopsy results. Also awaiting results of an spep. Fatique keeps me down. Daytrips may be possible soon. There is beauty in each day, for which am deeply grateful. Thank you.

Hi Lin, Twelve days after surgery is very early days, so I'm not surprised you still feel fatigued! Waiting for biopsy results is something we can all relate to and they never come quick enough! Sometimes they can take up to three or four weeks or more depending on what they are testing for. I'm afraid there's nothing you can do about that except just try to be patient and it's not easy. I hope you get stronger with each passing day and when you do get the results, they are all good!

Hi Anndanv, nice to see you back and good to hear you had a nice holiday and that your surgery was succsessful, I was one of 35 people in Leeds that contracted E-coli some years ago and it knocked me off my feet for 3 months or so. It was traced back to pork pies from a deli who was supplied by a local butcher who had been in trouble for hygene failings previously, if i had known it was one of their pies i wouldnt have bought it. Lynn 2.xx

My wife almost died after catching meningitis cause by the e-coli virus after an operation to reduce a non malignant tumour on her spinal cord - spent 5 days in ICU and a total of 6 months in hospital. Still suffering health problems some 4 years later from this. I work in the food industry so was obviously aware of how serious e-coli can be, but never imagined something like this would happen.

John

Hi John, I was sorry to hear about your wife but glad she got through it. What sort of problems have lingered, if you don't mind me asking? So your wife was also in hospital for a spinal op too! You don't expect to go in for an op and then after you come out, feel worse!      I was allergic to the internal stitches so when I started to feel unwell, it was put down to that until I just got worse and worse, then they decided to take urine & blood samples and that's when E-coli was confirmed. They wanted to take me back to the same hospital but I said I'd rather not, so they decided to treat me at home. The District Nurses were amazing! I must say, I know the infection has cleared now but I still don't feel 'right'!  I'm wondering if your wife has had any other treatment o is she just dealing with it herself? 

Hi John, I was sorry to hear about your wife but glad she got through it. What sort of problems have lingered, if you don't mind me asking? So your wife was also in hospital for a spinal op!  You don't expect to go in for an op and then after you come out, feel worse!      I was allergic to the internal stitches so when I started to feel unwell, it was put down to that until I just got worse and worse, then they decided to take urine & blood samples and that's when E-coli was confirmed. They wanted to take me back to the 'same' hospital but I said I'd rather not, so they decided to treat me at home. The District Nurses were amazing! I must say, I know the infection has cleared now but I still don't feel 'right'!  I'm wondering if your wife has had any other treatment o is she just dealing with it herself? 

Thanks for your reply Lynn. A pork pie eh!! I've never liked them! I wonder if the butcher was charged when he failed a hygiene inspection? I'm surprised the deli you went to actually bought them from that butcher. I hope he has since been closed down now! How are you doing Lynn? 

She came through but has lost some hearing (known side effect of meningitis) and has never recovered full mobility. Gets around the house with a Zimmer, but needs a wheelchair when we go out. Unfortunately had a couple of falls indoors which resulted in her fracturing her left and, and two fractures to the right leg. She has been in hospital for just over 6 weeks now so not getting much downtime at the moment. I pick up next batch of meds tomorrow, with a 3 month scan planned for beginning of August

That should of been left LEG. Currently she has both legs in plaster and, luckily, has been moved to the local "cottage" hospital for recuperation so can visit daily after work on my way home.

Hi John, I was so sorry to read that your wife has been in hospital for such a long time. It's good she has been moved to a cottage hospital when it makes visiting easier for you but hospital visiting is so exhausting! I also have very limited mobility and use elbow crutches at home or for a short distance but have to use a wheelchair when going a bit further. My goodness, that's a lot of broken bones, poor thing, has she been tested for osteoporosis? Do you know when they are taking off the plasters? I'm assuming she will need a lot of physiotherapy once they do come off! It seems that most people "living with cancer" also have lots of other things to cope with as well, as they say it never rains but it pours! I hope your wife is comfortable and will soon be on the mend!