Coming off trail to start new treatment scary

FormerMember
FormerMember
  • 11 replies
  • 41 subscribers
  • 4499 views

Hello, I was on star trial for 3 years with Pazopanib had great care with my own specialist nurse, today I go to hospital to pick up Cabozantinib not on a trial and by sounds of it I don’t I have a nurse who I can phone if any problems, just a 24 hour phone number. I understand they probably don’t have the staff but considering what we are all going through they’d have someone available a palliative care nurse. Will see what today brings being incurable sometimes feels like people don’t care, it’s all about people they can cure. Not sure if i’m Over thinking it or probably just scared not having a nurse to chat to, she was like my friend not just a nurse

  • FormerMember
    FormerMember in reply to Gragon

    Hello Gragon

    there is a grumpyConfoundedRageTriumphso grumpy Rage angry, (fuck you) emoji lots of choice. You may find one that works for you. Sorry for the F.  Bomb Bomb but thought it was necessary to express the emoji.