Hey. I am new here. 37 year old mummy to a wee girl.
Recently diagnosed with stage 3 T4, high rectal cancer.
I am meeting the oncologist soon to discuss when I am starting my radiotherapy and chemotherapy. No clue of the type. Plan to shrink the tumour then surgery later down the line. My bowel is beginning to pinch so I am having a stoma over the next week or two (no date yet)
Trying to process this information as much as I can. As well as keeping the brave front for my little one trying to keep routine as much as I can. Because in all fairness apart from the dodgey bowel habits I feel a bit like a fraudster. (Which I know is a blessing as I am in very good health)
I don't even know what I am asking you guys. But any and all tips advise that you can give us appreciated.
Hello
You have received some excellent advice so far and yes welcome to the community no one chooses to join.
In addition to the below I found the following useful for hospital stay
Night shirts or nightie…I took pjs but couldn’t bear anything around waist area.
A hand mirror to help you see when changing your bag
Build yourself up before the operation because unknown how your appetite will be following it.
Let your little one choose a name for your stoma so they’re involved since they will be inquisitive.
I had the option for a reversal in 2018 following checks to see that everything had healed…even without any rectum I decided to go for the reversal and for me this was successful and the correct decision which is very personal.
Good luck
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Thank you so much for your reply Panda21 I really appreciate you taking the time
I️t took me a while to join this forum as I was so worried about anything negative being said but it's been great!
And thank you for all the tips. I will get a mirror that's great. Didn't think about the waist band also thank you. With get a few night shirts.
My LG is very inquisitive. That's such a great idea! Thank you for that!
And that's fantastic to hear about your reversal. I am so pleased that was the right decision for you!! And it really fills me.with hope.
100% live for today ️️
Thank you!!!!! X
