My husband has been given the choice (updated scans permitting) between a partial pelvic exenteration which would allow him to keep his prostate and bladder but carries a risk of R1 margins or a total exenteration which would mean both a urostomy and colostomy but increases the chances of clear margins. With the partial he has a 1/4 chance of R1 margins vs 1/8 for the total.
I was hoping to get some insight on the difference in quality of life between 1 and 2 stomas. As his wife my initial instinct is to do whatever increases his chances of a cure but this has to be his decision as it’s his ongoing quality of life that is impacted. He is 46 and other than the cancer, is fit and healthy. I’m trying to support by researching a bit more but it’s hard to find anything on quality of life differences between one and two stomas. He’s made peace with the colostomy but the urostomy in addition to this has knocked him.
We know the recovery will be long and hard (and nothing is guaranteed) so wanting more of an insight into long term quality of life differences between these options. The surgeon has said it has to be a personal decision and is willing to perform either surgeries.
Hi All
today he looks much better in the face , stoma working well. Drinking squash and apple juice today. Lungs clear and they stood him up but light headed so didn’t walk. The doctors say he’s doing good. Pain is being managed by epidural and he’s able to administer himself. Lying on the side for him works well so he’s off the flap. He’s much more comfortable today. He’s feeling positive and even wat
ing sports on the iPad 
