Sleeplessness, anyone else awake out there?

12 replies
22 subscribers
134 views

Anybody else out there right now unable to sleep

Hi Bubbles67 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I’m sorry to read that you were unable to sleep and I know how horrible lying awake at night can be. I can see that since posting this message you found and joined in on the thread 'awake and up all night'.

I hope you were able to get a few restful hours.

"Never regret a day in your life, good days give you happiness, bad days give you experience"

Xsparklex 4 days ago in reply to latchbrook

Hey totally new to this... its not me but my dad. Fought lung twice and recently found out its back but showing signs its spread to the brain. Struggling with it this time round

latchbrook 4 days ago in reply to Xsparklex

Hi Xsparklex and welcome to the online community.

I’m Anne, one of the Community Champions here on the Online Community, and I'm sorry to read that your dad's lung cancer has spread to his brain. It's perfectly natural to be feeling as you do.

The online community is divided into different support groups and I can see you've already found and joined the lung cancer group which is a great place to connect directly with others who have the same type of cancer as your dad.

Other groups which you might like to join are the secondary brain cancer and family and friends groups.

If you'd like to join, just click on the links I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

It would be great if you could put something about your dad's diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

"Never regret a day in your life, good days give you happiness, bad days give you experience"

CHEMLETE 3 days ago

Hubby has come home to die. I am awake all night listening for every breath. How can sleep/relax when every breath could be his last?

Tricolour 3 days ago in reply to CHEMLETE

I am so.deeply saddened to read this. I cannoy imagine being able to sleep in your situation

Is thete nobody home to support you

CHEMLETE 3 days ago in reply to Tricolour

Have 2 boys 12,15. Sister helped me get hubby home but she stayed last night too. I’m frightened in th night. I hate the moan on each breath. I’m afraid he’ll need something and I’ll be asleep.

Tricolour 3 days ago in reply to CHEMLETE

Of course. At the same time you myst be exhausted.

Delia 3 days ago

Yes .me, Delia. Listening to Radio 4, and joining Macmillqn.

Have fairly new( earty December) diagnosis of small cell lung cancer and 1st chemo on Monday.

What about you?

Lynne 592bf2f0 3 days ago in reply to Delia

I to have the same diagnosis as you.i have had two lots out of four.chrmo and immumaphy. Treatment is not as bad as you think it is going to be .the hardest part was loosing.my hair . Sending hugs

CHEMLETE 3 days ago in reply to Delia

Hubby stage 4 metastasize bowel cancer (liver lungs bladder) diagnosed in feb. Colostomy bags and 2 nephrostomy bags on top of type one diabetes. After 20 weeks . Went back to full time maths teaching in July even though he was on FOLFIRI. Has 11 rounds and then on e of FOLFOX. But Recurrent infections meant 3/4 day on hospital a shed load of antibiotics and he was teaching op until 18yh December! 27yh infection go a hold of him. He has come home to take his last journey. Am frightened.