I am not sure if you will be able to help - my dad is 86 years old and was diagnosed with MM in Sept 2020 - Back pain main issue and after diagnosis he was sent home - chemo was in tablet form and all consultations were done over phone with visits to hospital for infusions for his bones. He did lose a lot of weight but on the whole seemed to cope. over the past few months he has had a number of falls one of which resulted in a fractured hip and in hospital was treated also for a urine and chest infection and was discharged with medication . Less than a week later he was back in hospital as a result of serious pain in his chest and back and was diagnosed with a blood clot in his lung and another infection which resulted in him being very wandered. Today he has been discharged again.
My mum was the only person allowed to visit and at 80 , she probably didn't want to be a pest and ask as many questions as we would. I know there were many blood tests taken . I am struggling , I live alone and don't have a partner to share my worries with and do not want to burden my mum , she has enough to deal with. I have done some on line research which suggests that recurring infections are something which is common in MM and often at the later stages of the disease, however I am reticent to base my knowledge and ultimately my emotions about the situation based on a google search so have decided to contact MacMillian who I now will be able to give me greater knowledge of what to expect , i appreciate not specifically . i think that if I more knowledge of what could potentially be ahead i can prepare myself , my mum and all of us who love my dad of what is ahead and how we are going to cope with it .
Sorry to rattle on, I hope this makes sense , JIll