Hi there
I had an operation to remove a tumour (liposarcoma) and one of my testicles. I had collateral damage whereby due to nerve damage i have chronic pain in the leg below where the tumour was removed. I now have to use a stick and am now intermittently incontinent whereby due to the chronic pain I pass water without me knowing about it until I feel dampness in my groin. During my time in hospital I contracted sepsis but it didn't become apparent until I'd left the hospital. I felt as though as I going to die when the sepsis attacked me all of a sudden and due to this I now have PTSD with the event. I was rushed back to hospital whereby I was there for a considerable period of time due to the infection. I've been in touch with a Community Physiotherapist who arranged for me to have a bannister fitted to I could access the first floor of my property, as well as grab rails in my en-suite and master bathroom. I also have a stool which I use in my kitchen when I'm preparing my meals and a 'strolley' trolley so I can move my meals from my kitchen to my lounge. I'm very grateful for the items, however, I recently applied for PIP and was humiliated to be told that my conditions didn't meet the criteria for payment. My son visits me almost everyday and assists with batch cooking, cleaning the house and ensuring that my hygiene is of an acceptable standard. He also helps with shopping and dealing with complicated matters involving myself such as dealing with bills. I get anxious dealing with matters concerning money and he oversees my bank account with my permission. I'm on medication both for the pain in my leg and for my anxiety and depression which I've had for many years. I feel that things are just getting worse and feel no end in sight with how I feel. I feel guilty having my son use most of his free time after work to assist me. I feel so isolated. I also have requested via my GP for an assessment as I've admitted to myself I've classic traits of being on the autistic spectrum. I have family who've been previously assessed and have high-functioning autism. Can anyone suggest what I can do please?
I'm sorry if things appear to be all over the place, but it's how my mind feels at the moment.
All the best :o) XXX
