Chapter 7

1 minute read time.

Hi... where do I start? Joe was taken in to hospital with severe abdominal pain in the early hours of sunday morning.  After several hours of no news (you can probably imagine what I was thinking) we were told that Joe has adhesions that have caused kinks in his bowel.  Treatment is, morphine, NG feed and iv fluids to rest his bowel and hope that this is enough to put it right.... Fast forward to this morning.  I met him at the hospital for his oncology appointment and, to cut a long story short, he has multiple secondaries.  His oncologist suspects that they may have been present before his chemo began last september but were not large enough to be seen on his PET and CT scans.  They want to try and keep them at bay by doing another course of ECF because Joe was so well and seemed to respond to treatment.  Problem now is that Joe is too poorly for chemo, I have a horrible feeling that the 'adhesions' are not all they seem.  Joe took this all in, told his oncologist that he wanted all the news not just the fluffy version, then had a cry, not for himself but for his friends because he doesnt want them to be upset.  My son is incredible, an inspiration and a truely brave soul.  Im having a moment right now so will post again later.

Zoe xxx

 

Anonymous
  • FormerMember
    FormerMember

    Hi Zoe...So sorry to see joe is not to well again...we can only hope the treatment that he will recive will soon start to work...my thoughts and prayers are with you and your family...johnb....x

  • FormerMember
    FormerMember

    Thank you all so much.  Having your support really helps to keep me strong at the moment.  Today we brought Joe home he was so uncomfortable and miserable that it seemed the best thing to do.  Joes friends are all here now and he is laughing and smiling so I know we made the right decision. The District Nurse will come in daily and the Palliative Care Team are going to make sure we get what we need so I am fairly happy that we can cope. Im really not ready or prepared to let Joe go, I want him to achieve all the things he had planned for this year, I need time for us to feel at peace with the inevitable and I want the sun to shine.  Zxx

  • FormerMember
    FormerMember

    HI, thinking of you both and praying all will be well eventually. You have a great attitude so I guess this is where Joe gets it from. Being painfree and with those you love is a great healer as well . The sun will shine on you , you both deserve it. All my love leisha xxxxxxx ((((((((((((((((H))))))))))))))))

  • FormerMember
    FormerMember

    I am so sorry to read your post and just wanted to send you and Joe as much strength and postitivity as I can.

    I am so pleased he is at home with you where he belongs and will keep everything crossed for you that he is kept painfree and laughing with his friends for a long time to come yet xxx